“Give yourself permission to not only grieve what you’ve lost but also celebrate the fact that there will be joy, there will be laughter, there will be freedom.”
– Amy Montemarano, Davis Phinney Foundation Ambassador living with young onset Parkinson’s
On June 26, 2021, we held The Victory Summit® Virtual Event: YOPD, shining the spotlight on people living with young onset Parkinson’s disease (YOPD). All of the speakers offered knowledge, wisdom, and above all, the message that your life is not over because you have Parkinson’s; it is just the start of something new.
In case you missed the event, you can watch all the recordings of the presentations below.
WELCOME AND Inspiration
To download the transcript for “Welcome and Inspiration,” click here.
To download the audio for “Welcome and Inspiration,” click here.
Additional resources from “Welcome and Inspiration”:
Hindsight Is 20/20: Thoughts from an Old, Young Onset
To download the transcript for “Hindsight is 20/20: Thoughts from an Old, Young Onset,” click here.
To download the audio for “Hindsight is 20/20: Thoughts from an Old, Young Onset,” click here.
Additional Resources for “Hindsight is 20/20: Thoughts from an Old, Young Onset”:
YOPD: Biology, Treatments, and Living Well Today
To download the transcript for “YOPD: Biology, Treatments, and Living Well Today,” click here.
To download the audio for “YOPD: Biology, Treatments, and Living Well Today,” click here.
Additional Resources For “YOPD: Biology, Treatments, and Living Well Today”:
Music and Movement
To download the audio for “Music and Movement”, click here.
Meaning, Mindset, and Purpose
To download the transcript for “Meaning, Mindset, and Purpose,” click here.
To download the audio for “Meaning, Mindset, and Purpose,” click here.
Additional Resources for “Meaning, Mindset, and Purpose”:
- “What Are People For?” A poem by Wendell Berry
- A Letter to my Newly Diagnosed Self, by Allan Cole
- PD Wise: Sharing Stories and Wisdom
- “Making Modern Toughness,” by David Books, New York Times
Reinvention of Self
To download the transcript for “Reinvention of Self,” click here.
To download the audio for “Reinvention of Self,” click here.
Additional Resources for “Reinvention of Self”:
- “He Sang for His Captors at Auschwitz. 75 Years Later, He Sang There Again,” by Keren Blankfeld, New York Times
- Janet Reno Offers Her Personal Perspective on Parkinson’s
- How to Help Children Understand Parkinson’s
- How to Turn Your Book about Parkinson’s into a Audiobook (or, How I’m Growing Into Parkinson’s), by Carol Clupny
How to Live Well with YOPD
To download the transcript for “How to Live Well with YOPD” click here.
To download the audio for “How to Live Well with YOPD,” click here.
Additional Resources for “How to Live Well with YOPD”:
more about our speakers
amy montemarano – Moderator and Speaker: reinvention of self
- Amy Montemarano Ambassador Page
- Spotlight on YOPD Council Member Amy Montemarano
- Parkinson’s: From Diagnosis to Acceptance
Davis Phinney – founder and Speaker: “every victory Counts®”
- Meet Davis
- Davis Phinney: Moments of Victory®
- Davis Phinney: Every Victory Counts®
- Ask The Parkinson’s Expert: Davis Phinney
Pamela Quinn – speaker: “hindsight is 20/20: thoughts from an old, young onset”
Rodolfo Savica – speaker: “yopd: Biology, treatments, and living well today”
- Rodolfo Savica: Mayo Clinical Profile
- [Webinar Recording] YOPD Council: Dementia and YOPD with Rodolfo Savica
- Upcoming Webinar: Dementia and Later-Onset Parkinson’s with Rodolfo Savica
Jackie Hanson – movement break facilitator: “music and movement”
allan cole – speaker: “meaning, mindset, and purpose”
- PD Wise
- Allan Cole on Advocacy, Education, and Living Well with Parkinson’s
- Exercise and Parkinson’s with Allan Cole, Judith Wilson, and Anson Rosenfeldt
Luke Waaler – speaker: “reinvention of self”
amy carlson – speaker: “how to live well with yopd”
- Amy Carlson Ambassador Page
- Moments of Victory® – Amy Carlson Squeezes all the Good out of Parkinson’s
- Eremite Performed by Amy Carlson
Connie Carpenter Phinney – speaker: “Closing”
- Connie Carpenter Phinney: Board of Directors
- Practicing Compassion and Resilience
- The Parkinson’s Care Partner Rulebook
- Parkinson’s in my House
- Care Partner Monthly Meetup
- How to “Reset” as a Parkinson’s Care Partner
ready to learn more about yopd?
Register for our monthly YOPD Council series here, where individuals with YOPD and expert guest panelists discuss a wide range of topics to help you live well with YOPD. By registering, you will not only receive the information needed to join the council live, but you will also be the first to be notified as soon as new YOPD Council recordings and information are posted. To check out past YOPD Council conversations, click here.
The Council meets on the third Thursday of every month from 1 – 2 pm MDT. Have an idea that you would like the YOPD Council to discuss? Fill out this form to let us know what topics you’d like the YOPD Council to cover in the future.
THE VICTORY SUMMIT® VIRTUAL EVENT SERIES
The Victory Summit event has moved online to reach more people than ever before with information and inspiration to live well today. Each event focuses on information for your unique Parkinson’s journey. Learn about The Victory Summit virtual events happening in 2021 here and sign up to be notified when registration opens for upcoming events in the series.