Although OFF times and dyskinesia are common aspects of living with Parkinson's and are both linked to Parkinson's medications, they are not as alike as you might guess. In this post, we highlight the differences between OFF and dyskinesia and strategies to manage them.
Parkinson’s presents before the age of 40 in about 5% of cases, making pregnancy post-diagnosis fairly uncommon. But for those of us who do add to our family following a diagnosis of YOPD, we worry about the effects of Parkinson’s or the medications we take on the health of our baby and how our symptoms will respond to the new demands that pregnancy places on our bodies. Many questions come to mind.
There are strategies you can use to minimize, or even prevent, being OFF. In this post, we’ll show you how.
In this post, we’ll talk about what it means for a medication to be on an exclusion list, how it might get there, what it means for your out-of-pocket costs, and how you can take action and fight back.
Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges. In this panel discussion, our YOPD Women's Council talked about the added challenges women living with Parkinson’s face as it relates to contraception and pregnancy.
While not a direct symptom of Parkinson’s, osteoporosis, a condition in which bones become weak and brittle, is extremely common among people living with Parkinson’s. Studies have found that osteoporosis and osteopenia (the beginning of bone mass decline, which can lead to osteoporosis) affect up to 91% of women and 61% of men living with Parkinson’s. Because weak and brittle bones are easily fractured or broken, and because people with Parkinson’s are often more at risk for falls due to postural instability, it’s important to understand the causes of osteoporosis and how to prevent bone loss so you can stay healthy and mitigate your risks of getting injured during a fall.
Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges.In this panel discussion, our YOPD Women's Council and special guest Dr. Karen Jaffe, MD, talked about the added challenges women living with Parkinson’s face as it relates to menstruation, menopause, and hormones.
In the book How to Live Well with Chronic Pain and Illness: A Mindful Guide, author Toni Bernhard addresses a broad range of topics and how the practices of mindfulness, equanimity, and self-compassion can make life as good and joyful as possible in the face of a diagnosis like Parkinson’s.
When you're living with Parkinson's, hospital stays—planned or unplanned—require special consideration. Here, we'll share how to prepare for a hospital stay, where to find helpful worksheets, checklists, and kits to take with you, and additional information that can keep you feeling your best during and after your stay.