Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges. In this panel discussion, our YOPD Women's Council talked about the added challenges women living with Parkinson’s face as it relates to contraception and pregnancy.
While not a direct symptom of Parkinson’s, osteoporosis, a condition in which bones become weak and brittle, is extremely common among people living with Parkinson’s. Studies have found that osteoporosis and osteopenia (the beginning of bone mass decline, which can lead to osteoporosis) affect up to 91% of women and 61% of men living with Parkinson’s. Because weak and brittle bones are easily fractured or broken, and because people with Parkinson’s are often more at risk for falls due to postural instability, it’s important to understand the causes of osteoporosis and how to prevent bone loss so you can stay healthy and mitigate your risks of getting injured during a fall.
Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges.In this panel discussion, our YOPD Women's Council and special guest Dr. Karen Jaffe, MD, talked about the added challenges women living with Parkinson’s face as it relates to menstruation, menopause, and hormones.
In the book How to Live Well with Chronic Pain and Illness: A Mindful Guide, author Toni Bernhard addresses a broad range of topics and how the practices of mindfulness, equanimity, and self-compassion can make life as good and joyful as possible in the face of a diagnosis like Parkinson’s.
When you're living with Parkinson's, hospital stays—planned or unplanned—require special consideration. Here, we'll share how to prepare for a hospital stay, where to find helpful worksheets, checklists, and kits to take with you, and additional information that can keep you feeling your best during and after your stay.
Imagine if you had access to your doctor or movement disorder specialist via a computer was just a few clicks…
With several COVID-19 vaccines now approved for emergency use, many people with Parkinson's have received their vaccines or are registered to do so soon. Have questions about the vaccine and its safety and efficacy for people with Parkinson's? Be sure to speak with your doctor, and explore some of the latest research and reports about COVID vaccines and Parkinson's.
While telemedicine isn’t intended for emergency care (like a broken bone, heart attack, or mental health crisis) or certain procedures (like immunizations or providing samples), it is appropriate and has been found to be quite effective for long-term care, follow-up appointments, issuing prescriptions, and answering simple questions. This makes it a great choice for people with Parkinson’s. Telemedicine eliminates the potential challenges of traveling to an appointment and gives you ready access to your providers when necessary. It also helps you conveniently build and maintain long-term relationships with your care team.
Although the terms ON and OFF have been used to describe responses to levodopa therapy for more than 40 years, there is still no universally agreed-upon definition for the term OFF, and everyone with Parkinson's experiences it differently. OFF periods occur when your medication isn't working optimally, and your motor and non-motor symptoms return. OFF is much more nuanced but understanding its scientific causes can help you minimize it in your daily life.
If you’ve been living with Parkinson’s for any length of time, you’ve probably heard the terms holistic care, supportive care, or palliative care. But you may not know what they mean when it comes to your care, now and in the future. Dr. Christopher Tarolli recently joined us to talk about palliative care and how it is ideal for people living with Parkinson’s.