Explore upcoming Parkinson’s educational and fundraising events below.
The Victory Summit® Virtual Event Series
The Victory Summit is going virtual to reach more people than ever before with information and inspiration to live well today. Each event will focus on unique information for your unique Parkinson’s journey.
For many years, the benefits and causes of sleep remained a mystery. However, in the past few years, sleep science has grown significantly. As a result, we now have a deep understanding of the importance of sleep, why it is so essential to sleep consistently and properly, the effects of sleep medicine, and how people with Parkinson’s are specifically affected.
Parkinson’s can impact sleep in various ways, ranging from trouble falling or staying asleep at night to excessive sleepiness during the day. A night of good sleep boosts everything from mood to the ability to think and process physical movement. Therefore, understanding the intersection of sleep and Parkinson’s can significantly impact quality of life.
During The Victory Summit Event: Sleep and Parkinson’s, we will explore neurodegeneration, light therapy, different types of sleep-related issues, cognition, mood, exercise, and how they all impact a person living with Parkinson’s. These sessions will not only be informative, but they will also inspire you to take action to improve your quality of life and manage this complicated symptom of Parkinson’s.
Research and anecdotal experience continue to show the critical importance of exercise for people with Parkinson’s. Regular physical exercise can improve mobility and coordination, boost mood, reduce stiffness, minimize soreness and fatigue, and may even slow down the progression of Parkinson’s itself.
During the event, we’ll be talking to some of the most sought-after experts in the field about what kind of movement to do, how much to do, when to do it, and how to know when enough is enough. We’ll also address topics such as neuroplasticity, intensity, the value and differences between cardio and strength training, and more. Maybe the best part, however, is that we’ll be offering short Parkinson’s-specific exercise sessions so you can try out all the different exercise programs you’ve likely heard about. It’s going to be a day of information, connection, and moving!
PAST EVENTS IN THE SERIES
Parkinson’s is officially classified as a movement disorder because it involves damage to the areas of the brain, nerves, and muscles that influence the speed, quality, fluency, and ease of movement. Motor (or movement-related) symptoms are usually the most visible elements of Parkinson’s; however, motor symptoms don’t actually appear in most people until around 60−80% of the nerve cells in the brain that make dopamine have stopped working because of Parkinson’s.
During The Victory Summit Event: Motor Symptoms, we will take a deep dive into tremor, rigidity, bradykinesia, postural instability, and OFF with some of the world’s leading Parkinson’s medical experts. In addition, we will feature short movement breaks that fit the event’s theme and show you how to move to manage your motor symptoms.
For People with Parkinson’s, by People with Parkinson’s
Sometimes, what you need more than anything is to be seen and heard by others who are traveling along a similar path. That’s what this event is all about. We’re turning over the stage to people with Parkinson’s for an event by people with Parkinson’s, for people with Parkinson’s. Our presenters will show you that it is possible to live well with Parkinson’s today—and to tell you how they do that day in and day out.
When Your Autonomic System Goes Off-Track
Digestion, temperature regulation, blood pressure, perspiration—all relate to systems in your body that, ideally, work without your having to even think about them. In Parkinson’s, however, these autonomic systems can get thrown off track, leading to symptoms like constipation, nOH, fatigue, erectile dysfunction, pain, and more. And all these symptoms can significantly impact a person’s quality of life.
With this awareness, we centered our first The Victory Summit Virtual Event of 2022 around the autonomic symptoms of Parkinson’s. We took a deep dive into gut health, pain, and autonomic dysfunction and regulation with some of the world’s leading Parkinson’s medical experts. In addition, we featured short movement breaks that fit the event’s theme that showed you how to move to manage these symptoms.
Whether you have just begun caring for someone who has been diagnosed with Parkinson’s, are dealing with a substantial progression of symptoms, or you’ve been caring for someone who has had Parkinson’s for a long time, a strong support network is critical to your own well-being.
The truth is unless you’re a medical professional who has been caring for people as your life’s work, having to step into the role of care partner is a big change and often a significant stressor. And it can take its toll on you – physically, emotionally, spiritually, and otherwise. This can lead to caregiver burnout or in its extreme, compassion fatigue, where you become overwhelmed physically, emotionally, spiritually, and socially to the point where you’re unable to care for yourself or others.
During this event, we learned from Parkinson’s care partner experts, Parkinson’s care partners, and mental wellness professionals about becoming the care partner your person with Parkinson’s needs without burning out, losing yourself, and losing the joy of life. Find a toolbox of practices that will help you thrive as a Parkinson’s care partner.
According to the Parkinson’s Outcomes Project, a study that tracked over 13,000 people in five countries with Parkinson’s, depression and anxiety are the two most important factors that affect the well-being of people with Parkinson’s. Nearly 80% of people living with Parkinson’s report feeling depressed and anxious at some point throughout their disease. Feeling depressed and/or anxious can negatively impact your motor symptoms, relationships, sleep, disease progression, ability to exercise, and more, all of which are critical aspects to living well with Parkinson’s.
Watch the recordings to learn from with doctors who specialize in symptoms related to mood. Hear from people with Parkinson’s who have experienced various levels of depression and anxiety and the actions they’ve taken to reduce these symptoms and live better and thrive with Parkinson’s.
Very often, the emotional, social, physical, and psychological needs of those diagnosed with YOPD are different from those diagnosed at an older age. You might be soaring in your career, expecting a baby, raising multiple school-age children at home, and/or getting ready to buy your first house. These are different concerns than those who are diagnosed much later in life have. That’s why we want to shine a spotlight on YOPD. We want you to have the education, resources, and support you need to live well with Parkinson’s no matter your age.
During this event designed specifically for people with YOPD, we heard from Parkinson’s experts and people living with YOPD on a wide range of topics unique to living with YOPD. From the biology and etiology of YOPD to treatments, reinvention, exercise, and more, watch the recordings and leave with a concrete plan on how to live well with Parkinson’s for many years to come.
For People with Parkinson’s by People with Parkinson’s
Over the past 15 years, our greatest joy has been getting to know people living with Parkinson’s. They are our greatest teachers, sources of inspiration, and the people we reach out to when we want to hear the real deal. That’s why we handed this event over to them to celebrate Parkinson’s Awareness Month.
Watch the recordings to learn from an inspirational lineup of speakers and small group leaders who have been living with Parkinson’s anywhere from two years to 20+ years. They share their best tips, most moving stories, and the actions they’ve taken to overcome their biggest challenges and most troublesome symptoms. Gather a wide variety of ideas to help you live well with Parkinson’s for many years to come.
During this event, we heard from and interact with movement disorder specialists, neuropsychologists, physical therapists, and people living with Parkinson’s about how to not only understand more about Parkinson’s but about how to live well and thrive with it.
View the event page to watch the recordings, view event materials, the digital program bag, virtual exhibit hall, and much more.
Have fun and fundraise at one of these upcoming events with Team DPF, our grassroots fundraising community that raises money to help people with Parkinson’s live well today.
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