Parkinson’s Care Partner Resources

As a Parkinson’s care partner, you are an essential member of your person’s medical and care teams. While most care partners are spouses, children, siblings, and parents, even friends can be part of the care team. Your role as a Parkinson’s care partner will evolve over the years; therefore, we want to offer you resources and action plans to help YOU live well while also providing the best care possible for your loved one.

Here, you’ll find a collection of our most popular and helpful Parkinson’s care partner resources.

Click here to explore more Parkinson’s Topics.

Young adult woman and older adult man walking in part
care partner meetup icon

Care Partner Monthly Meetup

Join us the first Tuesday of every month for a one-hour session just for care partners. Connie Carpenter Phinney, along with other care partner special guests, will discuss the concerns, challenges, and questions that many Parkinson’s care partners have today.

every victory counts® manual for care partners

In our two decades of working to help people live well with Parkinson’s, we have met tens of thousands of Parkinson’s care partners. With you, we have celebrated, laughed, cried, struggled, and overcome challenges. We have learned strategies to help people with Parkinson’s live their best lives. And we have been asked for advice on all aspects of Parkinson’s care. Throughout our new Every Victory Counts Manual for Care Partners, we share some of the most frequently asked questions we receive from Parkinson’s care partners, with responses from us, from Parkinson’s experts, and from Parkinson’s care partners.

guide icon

The Parkinson’s Care Partner Rulebook

Create a personalized rulebook for living well for you and your person with Parkinson’s.

toolbox icon

The Parkinson’s Care Partner Digital Toolbox

podcast icon

Advice for Parkinson’s Care Partners

In this episode of The Parkinson’s Podcast, Kelsey Phinney talks to her mom, Connie Carpenter Phinney, about being a Parkinson’s care partner for over 18 years.

Explore More Parkinson's Care Partner Resources

The Benefits and Burdens of Being a Parkinson’s Care Partner
Read
Notes from the Parkinson’s Care Partner Meetup – September 2022
Read
[Podcast] A Conversation with Dave Iverson on being a full-time caregiver for ten years
Listen
[Podcast] Managing the Role of Parkinson’s Care Partner
Listen
Notes from the Parkinson’s Care Partner Meetup – August 2022
Read
[Webinar Recording] A Conversation with Author Dave Iverson about his book Winter Stars
Watch

Connect with an Ambassador

Our Ambassadors connect with individuals and families looking for support and community to help them live well with Parkinson’s. The following Ambassadors are specifically interested in the role of care partners and are available to speak with you through email, phone, video conference, and in person.

Back to top