Parkinson's Care Partner Resources

As a Parkinson's care partner, you are an essential member of your person's medical and care teams. While most care partners are spouses, children, siblings, and parents, even friends can be part of the care team. Your role as a Parkinson's care partner will evolve over the years; therefore, we want to offer you resources and action plans to help YOU live well while also providing the best care possible for your loved one.

Here, you'll find a collection of our most popular and helpful Parkinson's care partner resources.

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Care Partner Monthly Meetup

Join us the first Tuesday of every month for a one-hour session just for care partners. Connie Carpenter Phinney, along with other care partner special guests, will discuss the concerns, challenges, and questions that many Parkinson’s care partners have today.

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A recent survey of our community indicated that care partners want and need specific training on managing advanced symptoms and medications, advice on how to manage acute symptoms and episodes, and practical ways to manage not just Parkinson’s care but other health-related concerns.

every victory counts® manual for care partners

In our two decades of working to help people live well with Parkinson’s, we have met tens of thousands of Parkinson’s care partners. With you, we have celebrated, laughed, cried, struggled, and overcome challenges. We have learned strategies to help people with Parkinson’s live their best lives. And we have been asked for advice on all aspects of Parkinson’s care. Throughout our new Every Victory Counts Manual for Care Partners, we share some of the most frequently asked questions we receive from Parkinson’s care partners, with responses from us, from Parkinson’s experts, and from Parkinson’s care partners.

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The Parkinson's Care Partner Rulebook

Create a personalized rulebook for living well for you and your person with Parkinson's.

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The Parkinson's Care Partner Digital Toolbox

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Advice for Parkinson's Care Partners

In this episode of The Parkinson's Podcast, Kelsey Phinney talks to her mom, Connie Carpenter Phinney, about being a Parkinson's care partner for over 18 years.

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Notes from the Care Partner Meetup: March 2024
Notes from the Care Partner Meetup: December 2023 

Connect with an Ambassador

Our Ambassadors connect with individuals and families looking for support and community to help them live well with Parkinson’s. The following Ambassadors are specifically interested in the role of care partners and are available to speak with you through email, phone, video conference, and in person.

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