Parkinson’s 101

Interior of wooden pantry with products for cooking. Adult woman taking kitchenware and food from the shelves

22 Jun: How Can Occupational Therapy Help Me Optimize My Environment for Parkinson’s?

Let’s look at some ways an OT can help you live well with Parkinson’s at home. Why? Because much of our lives are spent in our homes. We eat, sleep, and cultivate passions there. We create art, food, and music there. We study and educate ourselves there. And, of course, we visit others and maintain relationships there. So, home needs to be a place that supports our goals and allows us to thrive.
Charting Your Course

07 Jun: Register Now for Charting Your Course: A Parkinson’s Primer for the Newly Diagnosed

Charting Your Course was designed to shorten the distance between three life-changing words — "You have Parkinson’s" — and living well. Just a decade ago, researchers, clinicians, and people living with Parkinson’s alike did not stress the importance of exercise, stress management, diet, and other positive life choices on Parkinson’s. Today, we know that your experience can be impacted in a positive way by your choices and actions. The information we share here is a way for you to learn about these actions without being overwhelmed by information. Charting Your Course is designed as a four-week introduction to Parkinson’s, with one lesson scheduled for each day. However, just as your Parkinson's journey is personal and unique to you, Charting Your Course allows you to choose your pace and is totally flexible. You will have access to all four weeks of content as soon as you register, and you can walk through the content in any order you wish.
Medical Scientist Working with CT Brain Scan Images on a Personal Computer in Laboratory

08 May: What You Need to Know about Parkinson’s Research

Parkinson’s clinical trials, surveys, and studies for Parkinson’s treatments can be as simple as completing an online form or as involved as a months’- or years’-long drug trial. Some trials are observational, where researchers simply monitor participants in their natural state over a period of time. Others are interventional, where participants take a new medication or modify their behavior, such as incorporating a new exercise routine or eating plan into their daily lives, so researchers can see how the changes impact the participant’s Parkinson’s symptoms.
Doctor holding heart sticker

07 Apr: Building Your Parkinson’s Care Team

Living well with Parkinson’s means living well in all aspects of your life—physical, mental, social, spiritual. One provider can’t possibly treat every part of your life, so, ideally, over time, you will build a holistic, integrated care team and plan that is personalized to YOUR symptoms, needs, and goals. In the beginning, your primary care physician and neurologist or movement disorder specialist may be the only two people you need on your care team. However, your team may grow to include anywhere from three to ten or more providers over the years. Everyone is different, and not everyone will need the same types and number of providers. To give you an idea of the many professionals who can help you live well with Parkinson’s every day, here are some to consider. 
Two men having a conversation by a fence between houses

04 Apr: How to Communicate What Parkinson’s Is to Friends and Family

When a friend, colleague, extended family member, or even a healthcare professional who knows only the basics of Parkinson’s asks you to explain it, what do you say? If you don’t wish (or have the time or energy) to paint an in-depth portrait of your unique Parkinson’s, but you do wish educate others, simply stick to the basics. To help, here’s a list of short, to-the-point Parkinson’s “talking points” you can pull out when you need them.