Parkinson's Newly Diagnosed Resources
“You have Parkinson’s.” An estimated 60,000 people in the US hear these three words each year, setting them on a journey that, for so many, is filled with more questions than answers, especially in the beginning. But after 16 years of working to help people live well with Parkinson’s, we know these three words don’t have to mean giving up on the kind of life you imagined for yourself or your family. We also know that the longer it takes for someone to find the resources they need to live well, the longer their Parkinson’s will present challenges that affect their quality of life in negative ways. To help you get what you need, here is a collection of our most popular and helpful Parkinson’s resources for people who have been newly diagnosed.
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A Checklist for the Newly Diagnosed
We created a simple plan you can put into action quickly so you can live well now and for many years to come. To make it as easy to follow as possible, we’ve broken it down into what you can do every day, every week, every month, and every year to live well and thrive with Parkinson’s.
The Victory Summit® Virtual Event — Newly Diagnosed
This event will introduce you to a thriving Parkinson’s community, explain many of the treatments that can help with your symptoms, and help you create daily habits that will improve your quality of life for many years to come. As you set out on your unique path with Parkinson’s, we hope the content from this event will help you do so with an uplifted spirit, the motivation to take action to live well, and the support of a new network of friends who look forward to celebrating all your victories.
A Primer on Parkinson's for the Newly Diagnosed
When you are first diagnosed with Parkinson's, the amount of information available to consume can be incredibly overwhelming. In this article, we help you navigate to the right information so you can get started on your path to living well with Parkinson’s.
A Parkinson's Diagnosis
In this episode of The Parkinson’s Podcast™, Kelsey Phinney talks to Dr. Aaron Haug, a neurologist specializing in Parkinson’s, about the diagnostic process for Parkinson’s, the two most important parts of a Parkinson’s diagnosis, symptom differentiation between those diagnosed when they’re young (YOPD) and those diagnosed at older ages, how to reframe a Parkinson’s diagnoses and take control of your ability to live well with it, and more.
Explore More Newly Diagnosed Resources
- What is Parkinson's?
- You've been diagnosed with Parkinson's. Now what?
- How to Design Your Life with Parkinson's
- What Are the Motor Symptoms of Parkinson's?
- What Are the Non-Motor Symptoms of Parkinson's?
- Living with Parkinson's: What Is OFF?
- How to Communicate What Parkinson's Is to Friends and Family
- I Have Parkinson's and Am Experiencing X. Who Should I See?
- A Primer on Sleep and Parkinson's
- A Primer on Balance and Parkinson's
- Building Your Parkinson's Care Team
- Parkinson's Yoga Therapy for the Newly Diagnosed
- Protect Yourself: Boxing Lessons and Other Learnings from the Newly Diagnosed
- Parkinson's: From Diagnosis to Acceptance
- How to Share Your Parkinson's Diagnosis with Family, Friends, and Co-workers
- 5 Misconceptions about Living with Parkinson's
- A Resource Guide of 19 Complementary Therapies for People with Parkinson's
- The Gifts of Parkinson's
- How to Evaluate Parkinson's Resources
- The What, Why, How, and More of DBS for the Newly Diagnosed
- How Important Is Exercise to People Living with Parkinson's?
- We Can Choose How We Live with Parkinson's
- The Pathophysiology of Parkinson's
- Living Well with Parkinson's: Then and Now
- How to Find Inspiration While Living with Parkinson's
- Keepin' on: Living Well with Parkinson's
- Accepting Limits and Living with Parkinson's
- How to Talk to Your Kids about Parkinson's
- Giving Back and Living Well with Parkinson's
- Parkinson's vs. Parkinsonism
- 6 Myths about Parkinson's Clinical Trials
Connect with an Ambassador
Our Ambassadors connect with individuals and families looking for support and community to help them live well with Parkinson’s. The following Ambassadors are specifically interested in those who have been newly diagnosed and are available to speak with you through email, phone, video conference, and in person.
- Jim Armington
- Rick Buck
- Karen Frank
St. Louis, Missouri
- Shan Havins
Idaho Falls, Idaho
- Valerie Herrero
- Charlotte Juarez
- Angee Ludwa
- Frank Mundo
Phoenix, Arizona and Isleboro, Maine
- Stuart Munro
Lake Quivira, Kansas
- Helen Power
- Eric Rappaport
Cary, North Carolina
- Kristin S.
- Carol Schram
- Dennis Tinley
Brielle, New Jersey
- Mayra Torres
- Alison Nicol Walsh