What’s New in Parkinson’s: September 2021

Doctor checking brain testing result, analysis with modern virtual interface in laboratory

“Tiny brains in a dish.”  Walking to breathe easier. Sonic hedgehog, the protein. Ultrasound helmets to manage tremor. Specialized light therapy. AI and symptom management. Here’s what’s new in the world of Parkinson’s this month. Let us know if we missed anything!

PARKINSON’S ARTICLES

PARKINSON’S treatments and THERAPIES

PARKINSON’S LIVING WELL STORIES

PARKINSON’S SURVEYS, CLINICAL TRIALS, and volunteer opportunities

Genetic Counseling Training Program Research – If you have a diagnosis of Parkinson’s, you are invited to participate in a research study led by Sydney Richards, a master’s student in the Genetic Counseling Training Program at the University of Maryland School of Medicine. Sydney is conducting a new research study to better understand the experience of individuals with Parkinson’s with genetic testing. The study includes a short, online survey that should only take about 15 minutes to complete. All answers are anonymous. This study is voluntary, and your decision to participate will not affect your medical care. If you are interested in learning more about this study, click here. Responses will be accepted until November 16, 2021.

SPARX3 – A Phase 3 Clinical Trial about Exercise and Parkinson’s – This research team is currently seeking volunteers to participate in a clinical trial about the effects of aerobic exercise on people with Parkinson’s. Learn more and see if you qualify here. For more details, contact Katherine Balfany at SPARX3@ucdenver.edu.

Do you have early-stage Parkinson’s? The Orchestra Study is a clinical research study to evaluate the use of an investigational medication called UCB0599 in men and women with early-stage Parkinson’s. You can learn more and see if you qualify here.

PAIRing Up – If you are a person with Parkinson’s or a care partner to someone with Parkinson’s, you are invited to participate in an online survey to address neuropsychiatric (cognition, depression, anxiety) concerns in Parkinson’s. The survey aims to learn about the needs and priorities for clinical care, education, support, and research related to neuropsychiatric symptoms. To learn more and participate, click here to download the flyer. 

A multidisciplinary research team in the UK is investigating how to best use music to help people with Parkinson’s manage symptoms related to movement and mood. This includes research about music for dancing and is the first study to incorporate the new Dance Sophistication Index for people with Parkinson’s. To learn more and take a 30-minute survey, click here.

The University of Oulu and collaborators from Aalborg University, Fraunhofer University, the University of Manchester, the University of Glasgow, the University of Lisbon, and the University of Melbourne, are conducting a survey for people with Parkinson’s and Parkinson’s care partners about self-care. Complete the survey here to share your self-care strategies and techniques. You can also review ideas submitted by others and add them to your own self-care toolbox.

BouNDless – Phase 3 trial to investigate the efficacy, safety, and tolerability of ND0612, a continuous subcutaneous levodopa/carbidopa delivery system in comparison to oral levodopa/carbidopa in people with Parkinson’s experiencing motor fluctuations

Parkinson’s Progression Markers Initiative (PPMI) Screen Survey – The Michael J. Fox Foundation

Home-based Exercise and Cognitive Behavior Therapy – University of Alabama in Huntsville

Speech and Telemedicine Study – The Purdue Motor Speech Lab

Parkinson’s and Service Dogs – University of Groningen, Netherlands

Neurology Study Interest Registry – University of Rochester

Park Test – University of Rochester

Project Euphonia – LSVT Global and Project Euphonia

For more of what’s new in Parkinson’s news, check out our full series here

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