Live Well Today Webinar Series

At the Davis Phinney Foundation, we provide best-in-class education on a variety of topics that people can access from the comfort of their own home via our Live Well Today Webinar Series, sponsored by our presenting partners Adamas, Amneal, Kyowa Kirin, and Sunovion. Below are the topics we’ve covered as well as those planned for the future. To access a session, click on the title and then complete the form on the next page.

If you enjoy these webinars, please share them with your friends, family, and Parkinson’s community.

Thank You to Our Presenting Partners*

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Sunovion

Upcoming Webinars

Constipation and the Gut in Parkinson’s Webinar
Constipation and the Gut in Parkinson’s Webinar

September 21, 2021

Health Disparities: Living Well From A Cultural Context Webinar
Health Disparities: Living Well From A Cultural Context Webinar

September 29, 2021

Deep Brain Stimulation – The Latest Advancements Webinar
Deep Brain Stimulation – The Latest Advancements Webinar

October 19, 2021

Past Webinar Recordings

When you take Parkinson’s medications regularly and your symptoms re-appear or worsen, you are experiencing an OFF time. That seems to be a simple enough definition of OFF; however, it’s anything but simple. And when you feel OFF, it’s anything but pleasant. Nearly 35% of people with Parkinson’s experience OFF times (and this percentage increases with age), and OFF times can negatively impact quality of life in a myriad of ways. But there are ways to reduce OFF times. During this webinar, we discussed what it means to be OFF, the different types of OFF times, how to communicate about OFF, ways to treat OFF, and more.

Parkinson’s disease dementia (PDD) is a term used for dementia that develops after several or many years of living with Parkinson’s. In nearly all cases of Parkinson’s, people experience motor symptoms in the early stages; some may also have mild changes in cognition at diagnosis. Over time, though, non-motor symptoms of Parkinson’s may get so problematic that they are much more debilitating than motor symptoms ever are. Not all people with Parkinson’s will develop dementia, but for those who do, it can be a very difficult symptom to live with. In this webinar, Dr. Rodolfo Savica from the Mayo Clinic shared his expertise from over two decades of experience working with people with dementia.

If you’ve been living with Parkinson’s for a while, chances are good that you’ve either heard about how beneficial boxing is for people with Parkinson’s, or you’ve attended many boxing classes yourself. But how familiar are you with the latest and greatest research about boxing and Parkinson’s? In this webinar, our panel members shared specifics about the research they’ve conducted and described the effects of Parkinson’s severity and duration of boxing training on changes in balance, mobility, and quality of life for people living with mild or moderate to severe Parkinson’s.

Approximately 50-60% of people living with Parkinson’s experience varying levels of depression and anxiety. It’s important to know the difference between these common mood disorders so you can accurately explain how you’re feeling to your doctor and get the care you need. During this webinar, Roseanne Dobkin, PhD, discussed depression, anxiety, and apathy; the causes and treatments of them; and much more.

In Angela Duckworth’s book Grit, she examines why some people succeed and others fail, and why talent is hardly a guarantor of success. During this webinar we discussed whether human behavior is constant or circumstantial, how behavior change really happens, the mindsets that help people succeed regardless of challenges, and what Angela learned from having a father who lived with Parkinson’s.

Living alone while living with Parkinson’s can be a blessing or a curse. Some people love their independence and love being able to direct their days all on their own. For some, not having a live-in care partner, family member, or roommate is lonely and a hardship.

During this webinar, we talked with five people who are living alone with Parkinson’s, some by choice and others not. They shared their stories and offered ideas and advice on how to live alone and well with Parkinson’s.

A Parkinson’s diagnosis can bring with it a wide array of challenges. It is life-disrupting and can feel like the life you once knew and the one you dreamed about are gone forever. This can leave you feeling stressed, fearful, uncertain, and overwhelmed. In the book, How to Live Well with Chronic Pain and Illness: A Mindful Guide, author Toni Bernhard addresses a broad range of topics and how the practices of mindfulness, equanimity, and self-compassion can make life as good and joyful as possible in the face of a diagnosis like Parkinson’s.

During this session, Toni shared what she’s learned about living with chronic pain and illness and how to live well with it at every turn.

During this session with Ray Dorsey, MD, and Roseanne Dobkin, PhD, we talked about the state of telemedicine in the US, the laws that impact its use, and the efforts being made by advocates and policy makers to ensure that it’s legal, safe, and sustainable for the largest number of people. We also talked about the logistics of a telemedicine call, how to find out if you can schedule a telemedicine appointment, and what to do to make sure you get the most out of your medical team during these virtual sessions.

In this interactive session with Speech and Language Pathologist John Dean, you will learn about the various speech challenges related to Parkinson’s and, more importantly, what you can do every day to train your voice, improve your speech, and communicate more fluidly and clearly.

In this webinar, social worker Elaine Book discussed: 

  • Common challenges of being a Parkinson’s care partner 
  • Signs you might be on the verge of burnout
  • Strategies for avoiding burnout
  • A common challenge many care partners face and how to reduce the stress it causes
  • A simple roadmap for daily mental health care 

If you’ve been living with Parkinson’s for any length of time, you’ve probably heard the terms holistic care, supportive care, or palliative care. But you may not know what they mean when it comes to your care, now and in the future. In this webinar, Dr. Christopher Tarolli will discussed:

    • What your medical team means when they talk to you about palliative care
    • The types of providers who can deliver palliative care
    • The difference between person- and disease-centered care
    • How to make sure your core medical providers match your goals for care with your plan of care
    • How to advocate and receive the kind of supportive care you need even if your community doesn’t have a palliative or supportive care center for people with Parkinson’s
    • How to build your Parkinson’s roadmap

During the first half of this webinar, Dr. Laurie Santos discussed what new results in psychological science teach us about:

      • How to be happier
      • How to feel less stressed
      • How to flourish more no matter your situation

During the second half of the webinar, Davis Phinney and Connie Carpenter Phinney helped us unpack what we learned and opened the floor for questions. At the end, we offered some ideas for “rewirement” activities to help you create new happiness habits, boost your mood, and improve your overall well-being.

In this webinar, the panelists discussed:

  • The importance of seeing a physical therapist soon after a Parkinson’s diagnosis
  • The importance of aerobic, strength, and balance training when it comes to living well with Parkinson’s
  • How physical therapy can help reduce pain and improve overall mobility
  • How physical therapy can help with the non-motor symptoms of Parkinson’s
  • How to track your progress over time
  • New research in the works that may help you live better longer
  • Innovative therapies you can try at home

In this webinar, Dr. Malaty and the panelists answered:

      • What is Parkinson’s dyskinesia?
      • What causes it?
      • How does it differ from rest tremor in Parkinson’s or essential tremor?
      • What are the different types of dyskinesia?
      • Is dyskinesia painful?
      • What are common treatments for dyskinesia?
      • Are there any non-pharmacological or complementary therapies that can minimize dyskinesia?
      • Is dyskinesia inevitable?
      • And many more!

In this webinar, Dr. Haug discussed:

  • The three main types of medications used to treat the motor symptoms of Parkinson’s
  • Common misconceptions about levodopa
  • Strategies for choosing initial medication
  • Medication boosters
  • Side effects of the most common medications that treat motor symptoms
  • Recent developments in treatment options

In this webinar, Dr. Goetz answered the following: 

  • What causes Parkinson’s disease psychosis?  
  • What are hallucinations and delusions and their different types?
  • Do hallucinations happen while sleeping? Are they the same as vivid dreams and nightmares? 
  • What makes some people more likely to experience hallucinations and delusions than others?  
  • What can a person with Parkinson’s do to reduce or manage them? What treatments are available (pharmacological and non-pharmacological) 
  • What can a Parkinson’s care partner do when their person with Parkinson’s is experiencing them? 
  • When should someone see a doctor about them? 

In this webinar, founding teacher of Dance for PD® David Leventhal addressed:

  • This history of Dance for PD
  • The benefits of dancing for people living with Parkinson’s (even if you think you can’t dance)
  • Who Dance for PD classes are for and what they’re really about
  • The value of dancing with others
  • What to expect at your first class (and how to participate even if there’s not a program in your area)
  • The importance of exercise (how intense, how much, how often)
  • And much more

In this webinar, movement disorder specialist Dr. Ray Dorsey addressed:

  • The stages of Parkinson’s and how to recognize the signs of progression
  • Prodromal symptoms of Parkinson’s
  • Common symptoms that are often misdiagnosed as Parkinson’s
  • How to “interview” patients effectively
  • Some of the key differences between how men and women experience Parkinson’s
  • The importance of exercise (how intense, how much, how often)
  • Challenges with medication and medication side effect management in Parkinson’s
  • When to make a referral and to what type of specialist

In this webinar, Dr. Michael Okun shared his eight pearls for living a better life, including information on:

  • The importance of knowing your Parkinson’s type
  • One of the most powerful drugs you can take to reduce Parkinson’s symptoms
  • The number one reason you want to start medication therapy now
  • The ideal medication plan for you
  • How to know when medication isn’t enough
  • How to eat for energy, health, and longevity
  • And more…

Who this workshop is for: People with Parkinson’s and care partners who…

  • Love spreadsheets, methods, and systems
  • Are analytical thinkers
  • Enjoy details
  • Love to make plans, take action, and assess their performance regularly
  • Aren’t sure how they feel about all of the above but know what they’re currently doing to live well isn’t working

In this webinar, Dr. Ronald Postuma discussed:

  • What causes sleep problems in Parkinson’s
  • The difference between sleep changes related to aging and those related to Parkinson’s
  • The difference between sleepiness and fatigue
  • The connection between sleep and medication
  • Different types of sleep disorders (somnolence, insomnia, REM sleep behavior disorder) and how to treat them

Sponsored by Boston Scientific and Medtronic

In this webinar, the panel discussed:

  • The goals of DBS and how it works
  • About the different types of DBS systems (including the different types of batteries)
  • What symptoms DBS does and does not help
  • How quickly and how well symptoms respond to DBS over the long term
  • The biggest myths or misunderstandings about DBS
  • How to blend DBS and medication and what to expect over time
  • How the approval/evaluation process works
  • About the ethical implications/dilemmas related to DBS
  • How programming works, potential challenges related to programming, and what to expect
  • Developments and innovation in DBS

In this webinar, Dr. Al Condeluci shared:

  • The key concepts and importance of social capital
  • The difference between social isolation and loneliness
  • The biology of social isolation
  • The different types of relationships and the different types of value they bring to your life
  • What causes people to lose their social capital
  • How to develop social capital (or get it back if you lost it)

In this webinar, Dr. Janis Miyasaki discussed:

  • About the prevalence of pain in those living with Parkinson’s
  • The structure of the pain pathway and the different types of pain experienced in Parkinson’s
  • What causes pain in the early stages of Parkinson’s and how it may change as Parkinson’s progresses
  • How pain impacts mental health
  • How to talk to your doctor about pain
  • About the different treatments for different types of pain, pharmacologic and non-pharmacologic
  • What you can do every day and throughout your journey with Parkinson’s to manage pain

In this webinar, Dr. Michael Okun addressed the following topics:

  • The current thinking on how to prevent onset
  • How to make expert care available to all
  • Where research is now and where it’s headed
  • How to reduce the costs of new treatments
  • What we can do today to advocate for the Parkinson’s-free future we all want

In this webinar on anxiety, depression, and apathy, Dr. Gregory Pontone answered the following:

  • What’s the difference between depression, anxiety, and apathy and how are they related?
  • What are the different types of depression and anxiety?
  • What are the causes of depression, anxiety, and apathy in people living with Parkinson’s?
  • When and how do you treat depression?
  • When and how do you treat anxiety?
  • How do you treat apathy?
  • What are some of the latest in treatments, including non-pharmacological interventions for these mood-related issues?
  • And much more!

In this webinar, Judy Long addressed:

  • How to transform helplessness
  • How to manage the feelings of helplessness in each moment
  • How to reframe and embrace helplessness
  • How to deal with the daily losses of living with Parkinson’s
  • How to embody constructive engagement
  • How to cultivate compassion-based practices to serve the self and others
  • And much more

In this webinar on financial wellness, Alice Lightner Johnson, a specialist in estate and financial organization, discussed:

  • The first step you can take toward achieving financial wellness
  • How to build your financial team and who to have on it
  • The must-have documents you should complete right away
  • How to make cost projections no matter how old you are
  • How to make sure your accounts are in order and won’t cause added stress for loved ones
  • The best way to organize all of your hard and digital assets
  • Strategies for organizing and simplifying your financial footprint
  • What, when and how to communicate with family about your finances

In this webinar on Parkinson’s nutrition and living well, Dr. John Duda addressed:

  • How dietary choices can affect symptom control in Parkinson’s
  • How particular foods and timing of meals may interfere with Parkinson’s medication
  • How age, progression of Parkinson’s and history can affect the efficacy of certain dietary choices
  • Dietary management of non-motor symptoms in Parkinson’s such as sleepiness and fatigue, nOH, constipation, and excessive weight loss
  • The role of the gut microbiome in Parkinson’s and how to improve the gut by making better dietary choices
  • How nutrition can change the molecular mechanisms present in people with Parkinson’s and may even provide disease-modifying effects
  • And much more

In this webinar on cognition and how it relates to other non-motor symptoms, Dr. Jennifer G. Goldman addressed:

  • Non-motor manifestations of Parkinson’s
  • Causes of and management of non-motor symptoms
  • Cognitive symptoms, depression and other mood issues and how they may affect people with Parkinson’s
  • Confounding factors that affect cognition and signs that may indicate changes in cognition are the result of medication side effects or infections
  • Psychosis in Parkinson’s: how common, what causes it and how to manage it
  • The emotional toll that cognitive, mood, and other non-motor symptoms can have on a person with Parkinson’s and their care partners and how to manage it
  • And much more

In this webinar on the latest Parkinson’s research and clinical trials, Dr. Drew Kern addressed:

  • The different types of clinical studies and phases of clinical trials
  • The benefits and risks of taking part in clinical trials
  • Important information to consider before participating in a clinical trial
  • Where to learn about current clinical trials and how to apply
  • The latest Parkinson’s research and how it may affect you in the future
  • Innovations and advancements in surgical therapies for Parkinson’s
  • Novel diagnostic approaches and treatment options for Parkinson’s
  • And much more

In this webinar on psychiatric and cognitive complications in Parkinson’s, Dr. Daniel Weintraub addressed:

  • Parkinson’s progression and signs to look out for
  • Depression and mood disorders
  • The difference between Parkinson’s depression and general depression
  • The correlation between mood, motor function, and Levodopa levels
  • Parkinson’s Disease Psychosis (PDP)
  • Cognitive impairment and dementia and common cognitive profiles of those with Parkinson’s
  • Impulse control disorders (ICDs) and related behaviors
  • Anxiety
  • Sleep disorders
  • And much more

In this webinar on women and Parkinson’s, Dr. Michelle Fullard addressed:

  • Symptom presentation differences
  • Motor and non-motor symptom differences
  • Differences in Parkinson’s progression
  • Accessibility of care
  • Care partner issues
  • Disparities in outcomes
  • Quality of life differences
  • And more

In this webinar, Dr. Helen Brontë-Stewart addressed:

  • The goal of DBS
  • What happens when the neurosurgeon leaves the room (what to expect and how to prepare)
  • Dual therapy and how to blend DBS and medication
  • The pros and cons of fixed vs. rechargeable batteries
  • Symptom relief (how symptoms respond to DBS, how quickly and how well they respond over the long term)
  • Unexpected and surprising symptoms that DBS helps
  • Programming (how it works, potential challenges, and what to expect)
  • Developments and innovation in DBS
  • And much more

In this webinar recording, Dr. Kara Beasley discusses:

  • How Deep Brain Stimulation works
  • About the different types of DBS
  • What symptoms it does and does not help
  • How to decide what DBS device to get when there are so many options available
  • How the approval/evaluation process works
  • About the ethical implications/dilemmas related to DBS
  • The reality of DBS programming
  • The biggest myths or misunderstandings about DBS
  • And much more!

*While the generous support of our sponsors makes our educational programs available, their donations do not influence Davis Phinney Foundation content, perspective, or speaker selection.