Living with Parkinson’s

This collection of resources expands upon the information included in Section 1 (Chapters 1-6) of the new Every Victory Counts manual. It answers even more of the questions people ask us within the first year of their diagnosis.

These resources, organized by chapters that mirror the print manual, provide in-depth and updated information about the science of Parkinson’s, motor and non-motor symptoms, self-efficacy, the transition from diagnosis to acceptance, and strategies to help you live well today.

Four senior adults walking and laughing on beach
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Parkinson’s 101

Dr. Cherian Karunapuzha is a movement disorder specialist at the Meinders Center for Movement in Oklahoma City, and in this video, he shares his advice about what to expect after you’ve been diagnosed with Parkinson’s, what to do, and how to live well. One of our community members told us this is the best description of Parkinson’s she’s ever heard. We hope you’ll find it useful on your path as well. 

You’ve Been Diagnosed with Parkinson’s. Now What?

In this article, Tom Sheppard and Lauren Simmons share 20 of the most helpful actions they’ve taken on their journeys of living well with Parkinson’s.

How to Communicate what Parkinson’s Is to Friends and Family

Describing Parkinson’s to people who don’t have it is complicated for several reasons. So, when a friend, colleague, extended family member, or even a healthcare professional who knows only the basics of Parkinson’s asks you to explain it, what do you say? If you don’t wish (or have the time or energy) to paint an in-depth portrait of your unique Parkinson’s, but you do wish educate others, simply stick to the basics. To help, here’s a list of short, to-the-point Parkinson’s “talking points” you can pull out when you need them. 

Explore More Living With Parkinson's Resources

Every Victory Counts

Don’t have the Every Victory Counts manual yet? Click here to get your complimentary copy.