What’s New in Parkinson’s: June 2021

Tropical Fruit Fly on piece of fruit for Parkinson's research study

Fruit flies and dopamine. Naked mole rats and longevity. The long-term efficacy of DBS. Dance intervention. Joint pain and Parkinson’s. AI for treatment. Check out the latest in Parkinson’s research, surveys, and stories and let us know if we missed anything. Happy reading!

PARKINSON’S ARTICLES AND PODCASTS

PARKINSON’S THERAPIES AND MEDICATIONS

PARKINSON’S LIVING WELL STORIES

PARKINSON’S SURVEYS, CLINICAL TRIALS, and volunteer opportunities

If you are living with Parkinson’s and experiencing motor fluctuations, you are invited to join the BouNDless clinical trial, which is investigating ND0612, a solution of carbidopa/levodopa delivered as a continuous subcutaneous (under the skin) infusion through a pump system. The researchers are exploring whether the administration of carbidopa/levodopa as a continuous infusion will result in more constant medication levels in the blood, which may reduce Parkinson’s symptoms better than some standard treatments.

Do you have early-stage Parkinson’s? The Orchestra Study is a clinical research study to evaluate the use of an investigational medication called UCB0599 in men and women with early-stage Parkinson’s. You can learn more and see if you qualify here.

Want to learn more about findings around OFF and dyskinesia? Check out this infographic.

PAIRing Up – If you are a person with Parkinson’s or a care partner to someone with Parkinson’s, you are invited to participate in an online survey to address neuropsychiatric (cognition, depression, anxiety) concerns in Parkinson’s. The survey aims to learn about the needs and priorities for clinical care, education, support, and research related to neuropsychiatric symptoms. To learn more and participate, click here to download the flyer. 

A multidisciplinary research team in the UK is investigating how to best use music to help people with Parkinson’s manage symptoms related to movement and mood. This includes research about music for dancing and is the first study to incorporate the new Dance Sophistication Index for people with Parkinson’s. To learn more and take a 30-minute survey, click here.

The University of Oulu and collaborators from Aalborg University, Fraunhofer University, the University of Manchester, the University of Glasgow, the University of Lisbon, and the University of Melbourne, are conducting a survey for people with Parkinson’s and Parkinson’s care partners about self-care. Complete the survey here to share your self-care strategies and techniques. You can also review ideas submitted by others and add them to your own self-care toolbox.

Parkinson’s Progression Markers Initiative (PPMI) Screen Survey – The Michael J. Fox Foundation

Home-based Exercise and Cognitive Behavior Therapy – University of Alabama in Huntsville

Speech and Telemedicine Study – The Purdue Motor Speech Lab

Parkinson’s and Service Dogs – University of Groningen, Netherlands

Neurology Study Interest Registry – University of Rochester

Park Test – University of Rochester

Project Euphonia – LSVT Global and Project Euphonia

WANT MORE PRACTICAL ARTICLES LIKE THIS?

You can find much more in our Every Victory Counts® manual. It’s packed with up-to-date information about everything Parkinson’s, plus an expanded worksheets and resources section to help you put what you’ve learned into action. Request your free copy of the Every Victory Counts manual by clicking the button below.

Request Your Manual Now

Thank you to our 2021 Peak Partners, Adamas, Amneal, Kyowa Kirin, and Sunovion, as well as our Every Victory Counts Gold Sponsor AbbVie Grants, Silver Sponsor Lundbeck, and Bronze Sponsors Supernus and Theravance for helping us provide the Every Victory Counts manual to our community for free.

Related Posts