Parkinson's Care Partner Resources
As a Parkinson's care partner, you are an essential member of your person's medical and care teams. While most care partners are spouses, children, siblings, and parents, even friends can be part of the care team. Your role as a Parkinson's care partner will evolve over the years; therefore, we want to offer you resources and action plans to help YOU live well while also providing the best care possible for your loved one.
Here, you'll find a collection of our most popular and helpful Parkinson's care partner resources.
Click here to explore more Parkinson's Topics.
Care Partner Monthly Meetup
Join us the first Tuesday of every month for a one-hour session just for care partners. Connie Carpenter Phinney, along with other care partner special guests, will discuss the concerns, challenges, and questions that many Parkinson’s care partners have today.
CARE PARTNER TRAINING PROGRAM
A recent survey of our community indicated that care partners want and need specific training on managing advanced symptoms and medications, advice on how to manage acute symptoms and episodes, and practical ways to manage not just Parkinson’s care but other health-related concerns.
every victory counts® manual for care partners
In our two decades of working to help people live well with Parkinson’s, we have met tens of thousands of Parkinson’s care partners. With you, we have celebrated, laughed, cried, struggled, and overcome challenges. We have learned strategies to help people with Parkinson’s live their best lives. And we have been asked for advice on all aspects of Parkinson’s care. Throughout our new Every Victory Counts Manual for Care Partners, we share some of the most frequently asked questions we receive from Parkinson’s care partners, with responses from us, from Parkinson’s experts, and from Parkinson’s care partners.
Explore More Parkinson's Care Partner Resources
- How Can an Adult Child of Someone with Parkinson's Intervene without Interfering?
- How to Step Away from Parkinson's
- How to Communicate with Children about Parkinson's
- The Lessons I've Learned by Connie Carpenter Phinney
- How to "Reset" as a Parkinson's Care Partner
- Mood and Mental Health Strategies for Care Partners
- When to Say "No" and Why...as a Parkinson's Care Partner
- Occupational Therapy and the Care Partner Experience
Connect with an Ambassador
Our Ambassadors connect with individuals and families looking for support and community to help them live well with Parkinson’s. The following Ambassadors are specifically interested in the role of care partners and are available to speak with you through email, phone, video conference, and in person.
- Cynthia Camp
Asheville, North Carolina
- Pat Donahoo
Las Vegas, Nevada
- Robin Hanson
- Valerie Herrero
- Ken Hill
- Carol Schram
- Dennis Tinley
Brielle, New Jersey
- Mayra Torres