I’m a Parkinson’s Care Partner
Care partners are critical members of a person’s Parkinson’s support team. Whether a spouse, partner, family member, friend, or neighbor, care partners are essential to living well. Unfortunately, however, most Parkinson’s care partners step into this role unexpectedly and with little (or usually no) training. According to the National Alliance for Caregiving, 86% of care partners are untrained. They simply learn as they go. Our goal is to make that learning a little easier and a lot more useful.
We know it’s easy to get lost online. To receive a Parkinson’s diagnosis and then go from site to site, post to post, and organization to organization and come away feeling more overwhelmed and confused than when you started. We aim to reduce the overwhelm and help you find what you need fast. Below, you will find essential resources to help you on your journey as a Parkinson’s care partner, whether you just found out about your new role today or you’ve been a care partner for 20 years. And, if you can’t find what you need, please reach out to us here. We may know how to find what you’re looking for, or your inquiry may prompt us to create something new!
If You’re New to being a Parkinson’s care partner, start with the following Resources:
Read What is a Parkinson’s Care Partner?
Watch Being a Care Partner for Someone with Parkinson’s
Read How to Build Your Parkinson’s Care Partner Support Team
Read All About Parkinson’s Care Partners with Davis Phinney and Connie Carpenter Phinney
Read The Parkinson’s Care Partner’s Digital Toolbox
Watch Parkinson’s 101 for the Newly Diagnosed
Watch Parkinson’s Medication Management for the Newly Diagnosed
Watch Neuroplasticity, Exercise, and Parkinson’s
Read Exercising, Freezing of Gait, and Postural Instability in People with Parkinson’s
If You’ve Been a Parkinson’s care partner for a while and would like to expand your learning, start here:
Order The Every Victory Counts® Manual for Care Partners
Download The Parkinson’s Care Partner Rulebook
Read How to Stay Healthy and Avoid Burnout as a Parkinson’s Care Partner
Read Advice for Parkinson’s Care Partners
Watch Mood and Mental Health Strategies for Care Partners
Watch How Occupational Therapy Can Help You and Your Loved One with Parkinson’s Live Well
Read 5 Ways to Manage Apathy as a Parkinson’s Care Partner
Read Parkinson’s Medication Management for Motor Symptoms
Watch Parkinson’s Medication Management for Non-Motor Symptoms
If your person with Parkinson’s is in advanced stages and/or is experiencing more complicated symptoms, start here:
Read How to Bring Light to the Darker Side of Parkinson’s: A Primer on Hallucinations and Delusions and How to Manage Them
Listen Parkinson’s Disease Psychosis (PDD)
Read Impulse Control Disorders (ICD) and Parkinson’s: What They Are and How to Manage Them
Watch Dementia and Parkinson’s: Definition, Causes, and Management
Read The Difference Between Lewy Body Dementia, Parkinson’s Disease, and Alzheimer’s Disease
Watch Cognitive Complications in Parkinson’s
Read How to Understand and Manage OFF Times as a Parkinson’s Care Partner
Read Parkinson’s Home Care: What You Need to Know
If you have questions about being a care partner and would like to connect with others on a similar path, join us for our monthly meetup for care partners where we discuss the concerns, challenges, and questions many care partners face every day. We meet over Zoom on the first Tuesday of every month at 12 pm Mountain.
If you would like to choose your own care partner adventure and sift through all our care partner content on your own, click here.
Being a care partner is not easy, but for some, and hopefully you, it can be one of the most important and fulfilling roles you’ll ever have. And when it doesn’t feel all that great, know that we’re here to support you.