Approximately 50-60% of people living with Parkinson’s experience varying levels of depression and anxiety, and nearly all deal with loss. During this YOPD Council session, the eight members of our Council discussed how they have dealt with depression and anxiety; strategies that have worked and those that haven’t to get into a better headspace; tools for managing feelings of loss, how to communicate issues of mental health to friends, family, and care teams; how to manage anticipatory grief in yourself and others; and more.
As Parkinson’s care partners know well, everyone living with Parkinson’s experiences OFF times differently. (OFF times occur when their medication wears off, hasn’t kicked in, or just isn’t providing symptom relief.) For some, especially those who have been diagnosed for only a few years, OFF periods may be rare and a minor concern. For others, OFF can be a frequent and debilitating experience. No matter what stage of Parkinson’s your loved one is in, you can help them navigate OFF times so they can get back to feeling their best.
Feature by Steve Hovey, Davis Phinney Foundation YOPD Council Leader