Explore upcoming Parkinson’s educational and fundraising events below.
COMING IN 2021: The Victory Summit® Virtual Event Series
The Victory Summit is going virtual to reach more people than ever before with information and inspiration to live well today. Each event will focus on unique information for your unique Parkinson’s journey.
Click on each event topic below to learn more. Then, sign up to be notified when registration opens.
Hearing the words, “You have Parkinson’s,” is life changing. For some, a Parkinson’s diagnosis may mark the end of a long and frustrating search to explain a collection of different and seemingly disconnected symptoms. For others, a Parkinson’s diagnosis is a complete shock, filled with feelings of disbelief and despair. For everyone, a Parkinson’s diagnosis brings a new and unexpected journey.
Parkinson’s is not life-threatening, but it is progressive. This means that symptoms and effects of Parkinson’s will change and get worse over time. Parkinson’s is also very complex and can affect almost every part of the body, ranging from how you move to how you feel to how you think and process. When you are first diagnosed, the sheer amount of information and the uniqueness of each person’s experience of Parkinson’s can be incredibly overwhelming.
During this event, you will hear from and interact with movement disorder specialists, neuropsychologists, physical therapists, and people living with Parkinson’s about how to not only understand more about Parkinson’s but about how to live well and thrive with it.
Over the past 15 years, our greatest joy has been getting to know people living with Parkinson’s. They are our greatest teachers, sources of inspiration, and the people we reach out to when we want to hear the real deal. That’s why we’re handing this event over to them to celebrate Parkinson’s Awareness Month.
During this event, you will learn from and interact with an inspirational lineup of speakers and small group leaders who have been living with Parkinson’s anywhere from two years to 20+ years. They will share their best tips, most moving stories, and the actions they’ve taken to overcome their biggest challenges and most troublesome symptoms. By the end of this event, you will have made a host of new friends and gathered a wide variety of ideas to help you live well with Parkinson’s for many years to come.
Very often, the emotional, social, physical, and psychological needs of those diagnosed with YOPD are different from those diagnosed at an older age. You might be soaring in your career, expecting a baby, raising multiple school-age children at home, and/or getting ready to buy your first house. These are different concerns than those who are diagnosed much later in life have. That’s why we want to shine a spotlight on YOPD. We want you to have the education, resources, and support you need to live well with Parkinson’s no matter your age.
During this event designed specifically for people with YOPD, you will learn from and interact with Parkinson’s experts and people living with YOPD on a wide range of topics that are unique to your situation. From treatments to work, relationships, exercise, and more, you’ll leave with a concrete plan on how to live well with Parkinson’s for many years to come.
According to the Parkinson’s Outcomes Project, a study that tracked over 13,000 people in five countries with Parkinson’s, depression and anxiety are the two most important factors that affect the well-being of people with Parkinson’s. Nearly 80% of people living with Parkinson’s report feeling depressed and anxious at some point throughout their disease. Feeling depressed and/or anxious can negatively impact your motor symptoms, relationships, sleep, disease progression, ability to exercise, and more, all of which are critical aspects to living well with Parkinson’s.
During this event, you will learn from and interact with doctors who specialize in symptoms related to mood. You’ll also hear from people with Parkinson’s who have experienced various levels of depression and anxiety and the actions they’ve taken to reduce these symptoms and live better and thrive with Parkinson’s.
Whether you have just begun caring for someone who has been diagnosed with Parkinson’s, are dealing with a substantial progression of symptoms or you’ve been caring for someone who has had Parkinson’s for a long time, a strong support network is critical to your own well-being.
The truth is unless you’re a medical professional who has been caring for people as your life’s work, having to step into the role of care partner is a big change and often a significant stressor. And it can take its toll on you – physically, emotionally, spiritually, and otherwise. This can lead to caregiver burnout or in its extreme, compassion fatigue, where you become overwhelmed physically, emotionally, spiritually, and socially to the point where you’re unable to care for yourself or others.
During this event, you will learn from and interact with Parkinson’s care partner experts, Parkinson’s care partners, and mental wellness professionals who will help you become the care partner your person with Parkinson’s needs without burning out, losing yourself, and losing the joy of life. By the end you will have a whole new community of support at your fingertips and a toolbox of practices that will help you thrive as a Parkinson’s care partner.
Have fun and fundraise at one of these upcoming events with Team DPF, our grassroots fundraising community that raises money to help people with Parkinson’s live well today.