Webinar Series: YOPD Women

The First Wednesday of Every Month
12 – 1:15 pm Mountain Standard Time
(11 am PST, 1 pm CST, 2 pm EST, 7 pm GMT)

YOPD women face decidedly different challenges than do YOPD men. In general, women and men diagnosed with Parkinson’s experience differences when it comes to presenting symptoms, sleep problems, cognitive impact, responses to surgery, medication side effects, emotional health, and the care partner experience. But, when a woman is diagnosed with YOPD, you can add challenges related to contraception, pregnancy, menstruation, menopause, hormones, body image, aging, and more, to their plate. During our monthly YOPD Women sessions, we’ll address all of those topics with the help of doctors, specialists, and our YOPD Women Council leaders. Register today and join us for these lively, interactive, and truth-telling monthly sessions.

Can’t be there live? Register anyway, and we’ll send you the recordings as soon as they’re available.

Upcoming Topics

YOPD Women, Diagnosis, and Symptoms

February 3, 2021

Medications, Agonists

March 3, 2021

Period, Menopause, HRT, Hormones

April 7, 2021

Contraception and Pregnancy

May 5, 2021

Relationships (Marriage, Divorce, Dating, Sexuality, Kids, Parents)

June 2, 2021

Depression and Anxiety

July 7, 2021

Body Image and Aging

August 4, 2021

Work and Career

September 1, 2021

Clinical Trials and Research

October 6, 2021

Holistic Approaches, Complementary Therapies, and Nutrition

November 3, 2021

Culture

December 1, 2021

Council LEADERS

Gaynor Edwards headshot
Gaynor Edwards

Gaynor trained as a journalist and ran her own PR and marketing agency before being diagnosed with YOPD at the age of 42 in 2012. She soon learned that the condition was very different from that experience by those diagnosed at an older age and that the younger Parkinson’s community largely existed under the radar – many misunderstood, some misdiagnosed.

In January 2016 she launched Spotlight YOPD – the only registered charity in the world that represents and focuses on the specific needs of those diagnosed under the age of 50. The following year Spotlight YOPD was integral in having YOPD debated in the House of Commons. Gaynor is also the newsletter editor for Parkinson’s Movement and works closely with The Cure Parkinson’s Trust.

Kat Hill headshot
Kat Hill

Kat is from Portland, Oregon, where she lives with her husband and Yorkshire terrier “Baxter.” She believes that we can choose joy in our lives no matter what we’re faced with. Movement, mindfulness, and gratitude help her navigate the challenges of living with Parkinson’s. She is a retired nurse-midwife and delivered over 800 babies in her career. Now in her second act, she’s a Davis Phinney Foundation Ambassador, author, speaker, and advocate for living well with Parkinson’s.

Heather Kennedy headshot
Heather Kennedy

Heather is the founder of Kathleen Kiddo, an advocacy site offering resources and connection through social media. An entertaining speaker known for her unique talks and film presentations about living well with Parkinson’s, Heather writes from her home near San Francisco, CA. Since her diagnosis in 2011, she has collaborated with organizations such as the Davis Phinney Foundation, The Cure Parkinson’s Trust, and The World Parkinson’s Congress. In 2020, Heather expects to release two books, one on how to approach grief and a vivid collection of short stories.

Soania Mathur
Soania Mathur

Dr. Soania Mathur is a family physician living outside of Toronto, Ontario who resigned her clinical practice twelve years following her diagnosis of Young Onset Parkinson’s Disease at age 27. Now she is a dedicated speaker, writer, educator and Parkinson’s advocate. She speaks passionately about the challenges of adjusting physically and emotionally and the coping strategies available to patients.

Dr. Mathur is an active speaker in Canada and the US at patient-directed conferences and also serves as a resource for education projects. She works with The Michael J. Fox foundation for Parkinson’s Research and serves as Co-Chair of their Patient Council. She is a member of The Brian Grant Foundation Advisory Board, the Medical Advisory Board for Parkinson Canada and also works with Parkinson’s Movement UK on North American initiatives. Dr. Mathur has valued her involvement with World Parkinson Congress as both a speaker and committee member. Locally she is a member of the Board of Directors for the Lakeridge Health Foundation. She has authored a number of published papers and online pieces and is a regular contributor to Huffington Post Blog. She is the founder of Designing A Cure Inc., which was initially created to raise funds directed towards research and awareness of Parkinson’s disease and now serves as a platform to educate and inspire those living with this disease to take charge of their lives and to live well with Parkinson’s. Dr. Mathur has a special interest in helping educate the youngest affected by the stress of Parkinson’s. To help facilitate dialogue between children and their loved ones, she has authored two books: “My Grandpa’s Shaky Hands” and “Shaky Hands – A Kid’s Guide To Parkinson’s Disease.” All proceeds from the sales of these books (available on Amazon) will be donated back to support Parkinson’s research and other efforts that serve the Parkinson’s community.

Karen Frank
Karen Frank

Karen was diagnosed with Parkinson’s at age 47 in 2018.  Following her diagnosis, Karen had to retire from her beloved career as a Certified Registered Nurse Anesthetist because of the challenges Parkinson’s presented when performing her job. Her unexpected early retirement opened the door for her to follow her passion to help others overcome challenges in their own lives.

Karen now spends her time helping physicians and nurses who struggle with substance abuse and serves as an Ambassador for the Davis Phinney Foundation. Karen thrives when helping others embrace living well with Parkinson’s.