I'm expanding my learning

Care partners are critical members of a person’s Parkinson’s support team. Whether a spouse, partner, family member, friend, or neighbor, care partners are essential to living well. Unfortunately, however, most Parkinson’s care partners step into this role unexpectedly and with little (or usually no) training. According to the National Alliance for Caregiving, 86% of care partners are untrained. They simply learn as they go. Our goal is to make that learning a little easier and a lot more useful.

We know it’s easy to get lost online. To receive a Parkinson’s diagnosis and then go from site to site, post to post, and organization to organization and come away feeling more overwhelmed and confused than when you started. We aim to reduce the overwhelm and help you find what you need fast. Below, you will find essential resources to help you on your journey as a Parkinson’s care partner, whether you just found out about your new role today or you’ve been a care partner for 20 years. And, if you can’t find what you need, please reach out to us here. We may know how to find what you’re looking for, or your inquiry may prompt us to create something new!

If you've been a Parkinson’s care partner for a while and would like to expand your learning, start with the following resources.

If you would like to choose your own adventure and sift through all our care partner content, access a full list of our Parkinson's care partner resources including our monthly meetup, training program, downloadable manual, podcasts, and more.

Blog Posts

Videos

Mood and Mental Health Strategies for Care Partners
How Occupational Therapy Can Help You and Your Loved One with Parkinson’s Live Well
Parkinson’s Medication Management for Motor Symptoms
Parkinson’s Medication Management for Non-Motor Symptoms

Recommended next steps

every victory counts® manual for care partners

In our two decades of working to help people live well with Parkinson’s, we have met tens of thousands of Parkinson’s care partners. With you, we have celebrated, laughed, cried, struggled, and overcome challenges. We have learned strategies to help people with Parkinson’s live their best lives. And we have been asked for advice on all aspects of Parkinson’s care. Throughout our new Every Victory Counts Manual for Care Partners, we share some of the most frequently asked questions we receive from Parkinson’s care partners, with responses from us, from Parkinson’s experts, and from Parkinson’s care partners.

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The Parkinson's Care Partner Rulebook

Create a personalized rulebook for living well for you and your person with Parkinson's.

Access a full list of our Parkinson's care partner resources including our monthly meetup, training program, downloadable manual, podcasts, and more.

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