2022 Healthy Parkinson's Communities Leadership Conference

2022 Healthy Parkinson’s Communities™ Leadership Conference

Presented by:
Davis Phinney Foundation for Parkinson's

Thursday, September 29 through Saturday, October 1
Kansas City, MO

Coming together can transform us.
That’s what the Leadership Conference is all about. This event will bring together our Ambassadors, Community Action Committee (CAC) leaders and members, community grant recipients, and community partners for two-transformational days filled with conversation, inspiring speakers, and sessions aimed at capacity building and community.

Explore the Event

This event website is your go-to resource for up-to-date information about attending, the agenda, what to do in Kansas City, and much more. Learn more by clicking the buttons below and don’t forget to bookmark this page, as more details will be coming soon.

Event Information

Kansas City Skyline

Event Materials

If you registered to participate virtually, you should receive a program bag with event goodies before the event. However, if you do not receive it in time or prefer to view materials on your device, you can download digital versions below:

Digital Program Book

Digital Day 1 Workbook

Superpowers "I bring..., I need..." worksheet

Creating and Maintaining Coalitions and Partnerships

Zoom Meeting Link and Information

Meeting ID: 818 0396 9721
Passcode: 703092

Zoom Dial In Information

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+17209289299,,81803969721#,,,,*703092# US (Denver)
+16692192599,,81803969721#,,,,*703092# US (San Jose)

Dial by your location
+1 720 928 9299 US (Denver)
+1 669 219 2599 US (San Jose)
+1 669 900 6833 US (San Jose)
+1 971 247 1195 US (Portland)
+1 786 635 1003 US (Miami)
+1 267 831 0333 US (Philadelphia)
+1 301 715 8592 US (Washington DC)
+1 312 626 6799 US (Chicago)

Meeting ID: 818 0396 9721
Passcode: 703092

Find your local number: https://dpf-org.zoom.us/u/kd0i59KnLd

Welcome to Kansas City: Kickoff Happy Hour
Thursday, September 29
4:00 - 6:00 pm CDT

Tom’s Town Distillery
1701 Main Street
Kansas City, MO 64108 

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Join us for this informal gathering where we’ll reunite with old friends, meet people for the first time, and celebrate the chance to be together (at last!). Heavy appetizers and drinks will be served. Swing by before dinner or stay for the evening. We’ll provide fun ways to get to know fellow attendees and other informal activities, but there’s no formal program, so join when and for as long as you like. 

Parking Information: Tom’s Town Distillery has limited customer parking on the south side of the building. As well there are several parking lots located off of 17th St just north or west of the building. 

Note: There will not be a virtual participation component for this piece of the event. 

2022 Healthy Parkinson’s Communities™ Leadership Conference Event
Friday, September 30 and Saturday, October 1
9:00 am – 3:00 pm CDT

National WWI Museum and Memorial
2 Memorial Drive
Kansas City, MO 64108 

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Friday and Saturday, we’ll get to work. We plan for each day to end by around 3 pm CDT to allow for casual connections, exploration of Kansas City, and (importantly) time for rest in the evenings. Lunch and snacks will be provided on both days.   

Parking Information: If you plan to drive and park at the museum, visit this page on the museum website for details. 

Note: We will provide a virtual participation opportunity on both days. 

Explore the map below for key event locations or visit the our custom Google map by clicking here.

Save time at check-in and complete the event waiver! Click the link below to download the waiver. You can sign digitally and submit to Kayla at kferguson@dpf.org or print it and bring it with you. If you have a partner or friend participating in the event with you, please have them complete a waiver as well.  

Download the Waiver 

We will also have waivers on hand at check-in but taking time to complete it before you come will get you to the fun stuff faster! 

Best practices around Covid-19 safety are constantly evolving. Due to the cost and access to PCR tests, we will not require a negative PCR to attend the event. Updated guidelines and recommendations for the event are below. 

We aim to keep all in-person participants of the Healthy Parkinson’s Communities Leadership Conference safe and healthy throughout this event. As such, we will implement the following practices with our staff and encourage all participants to follow these guidelines as well:  

  • Test daily. Davis Phinney Foundation staff will complete at-home COVID-19 tests each day of the event and will only participate in person if we have a negative test that day. We will provide all in-person participants with at least two at-home tests in event bags.  
  • Communicate and respect personal boundaries.  We will use a color-coded system on name tags to help attendees communicate their level of comfort with touch. Please respect the comfort level of others and freely express your own. 
  • Use and respect the use of masking. Many staff will choose to mask when participating indoors during the event, and we encourage you to do the same if that is your preference. We will also respect others, no matter their choice. 

Compliance with these guidelines will be enforced only by the honor system. We hope all participants can follow the practices above that best serve them and our community. 

If you have questions or concerns, please reach out to your program manager or contact us at communities@dpf.org. 

For the most up to date information about Covid-19 recommendation and precautions, please visit the CDC website.

If you should test positive for COVID-19 at any point during the event, we ask that you let Foundation staff member (and your point of contact for travel grants) Kayla Ferguson know that you have tested positive, do not return to the event, and adhere to CDC guidance for quarantine and isolation. You may use your travel grant (up to $1,500) to cover any additional costs associated with adjusting your travel schedule, but the Davis Phinney Foundation will not be able to cover costs that exceed $1,500.

If you have questions, please contact the Community Engagement team at communities@dpf.org 


Click the button below to download the digital program book. All times listed are central time. If you plan to participate virtually, we'll be adding Zoom information to this webpage soon and will email you information to access the virtual meeting.

Travel and Accommodations

Attendees of the Leadership Conference are responsible for booking and managing their own travel and accommodations. However, the Davis Phinney Foundation is providing travel grants to all Ambassadors, CAC leaders/members, and community grant recipients invited to attend.

Travel grant applications will remain open through September 10, 2022. 
Please contact your program manager if you have questions about these grants. 


The Westin Kansas City at Crown Center 
1 E Pershing Rd
Kansas City, MO 64108 

Distance from WWI Museum: 0.5mi (2min car ride, 8-10 min walk)
Hotel Parking: Valet - $32/day, Standard Self Park - $23/day 

Book The Westin Kansas City at Crown Center or call (888) 627-8359. 


Fairfield Inn Kansas City Downtown/Union Hill
3001 Main St
Kansas City, MO 64108 

Distance from WWI Museum: 0.7mi (4min car ride, 15-20 min walk)
Free Onsite Parking 

Book the Fairfield Inn Kansas City Downtown/Union Hill  


Sheraton Kansas City Hotel at Crown Center
2345 McGee St
Kansas City, MO 64108 

Distance from WWI Museum: 0.8mi (4min car ride, 15-20 min walk)
Hotel Parking: Valet - $32/day, Standard Self Park - $23/day 

Book the Sheraton Kansas City Hotel at Crown Center, or call (866) 837-4214. 

The closest airport to the event is Kansas City International (also referred to as KCI and MCI). Attendees are encouraged to select ground transportation that suits them best for travel to and from the airport and utilize travel grant funds to cover their selection. For detailed information about ground transportation options, visit the KCI website. 

We are grateful to the Rosina K. Sapir Ambassador Fund and Louisiana Walks for Parkinson’s for supporting the Leadership Conference travel grants. 

Things To Do

In the spirit of Healthy Parkinson’s Communities, we want to embrace the uniqueness of the location of this event. In addition to selecting local venues for event programming, we are also intentionally ending our days in the afternoon to allow you time in the evenings to gather in smaller groups or explore on your own. 

Stay in Touch

Why wait until September to get this party started? Join our “Leadership Conference Chatter” group on the Healthy Parkinson’s Communities HUB to talk all things #LC2022.  

 Have questions about the event schedule, travel grants, planning your participation, or something else?
Contact your program manager or email us at communities@dpf.org.

Sara Linn Headshot

Sara Linn
Ambassador Leadership Program Manager


Kayla Ferguson
Grants Program Manager

Thank You to Our Leadership Conference Sponsors

Thank You to Our Ambassador Program Sponsors

Sponsor the Leadership Conference

We invite sponsors of this event to join us as participants, learners, and contributors. If you are interested in supporting this important gathering of Parkinson’s community leaders (and joining in the event yourself!) please contact Jorie Parwani at jparwani@dpf.org.

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