2022 Healthy Parkinson's Communities Leadership Conference

2022 Healthy Parkinson’s Communities™ Leadership Conference

Presented by:
Davis Phinney Foundation for Parkinson's

Thursday, September 29 through Saturday, October 1
Kansas City, MO

Coming together can transform us.
That’s what the Leadership Conference is all about. This event will bring together our Ambassadors, Community Action Committee (CAC) leaders and members, community grant recipients, and community partners for two-transformational days filled with conversation, inspiring speakers, and sessions aimed at capacity building and community.

Explore the Event

This event website is your go-to resource for up-to-date information about attending, the agenda, what to do in Kansas City, and much more. Learn more by clicking the buttons below and don’t forget to bookmark this page, as more details will be coming soon.

Event Information

Kansas City Skyline

Once announced (in late spring), you will be able to access the event agenda, learn about speakers, and discover much more right here. In the meantime, we’ve provided basic information about the event and schedule so you can plan your participation.

If you have questions, please contact the Community Engagement team at communities@dpf.org 

It is our goal to host a safe gathering. As such, all in-person participants will be required to show proof of a negative COVID-19 PCR test taken within two (2) days of joining in any in-person event activities. This includes the Thursday evening welcome event and the Friday/Saturday conference. Only one COVID test is required for the duration of the event. In other words, you just need one test to show us upon arrival and that will carry through the weekend.

Please Note: Test should be PCR tests, and not rapid at-home tests. A list of free or low-cost testing facilities can be found here. As a reminder, PCR test results take approximately 48 hours, so please plan on taking a test early enough to receive your results before you travel for the event.

We understand that figuring out the timing with travel schedules can be a challenge with this 48 hour turnaround. For folks who are facing this challenge (if you are driving for multiple days to get to the conference, for example), we encourage you to do a PCR test with enough time to get results before you leave and then follow-up with an at-home test upon arriving at the conference to ensure nothing has changed.

At this time, we are not requiring proof of vaccination or masking but will encourage people to mask if that is most safe and comfortable for them.

As you know, protocols around COVID safety can change at any moment. We will continue to monitor the situation and communicate any changes to event expectations closer to the event. If you have specific questions or concerns related to attending this event, please let your program manager know.


Welcome to Kansas City: Kickoff Happy Hour
Thursday, September 29
4:00 – 6:00 pm CDT

Tom’s Town Distillery
1701 Main Street
Kansas City, MO 64108 

Join us for this informal gathering where we’ll reunite with old friends, meet people for the first time, and celebrate the chance to be together (at last!). Heavy appetizers and drinks will be served. Swing by before dinner or stay for the evening. We’ll provide fun ways to get to know fellow attendees and other informal activities, but there’s no formal program, so join when and for as long as you like. 

Note: There will not be a virtual participation component for this piece of the event. 

2022 Healthy Parkinson’s Communities™ Leadership Conference Event
Friday, September 30 and Saturday, October 1
9:00 am – 3:00 pm CDT

National WWI Museum and Memorial
2 Memorial Drive
Kansas City, MO 64108 

Friday and Saturday, we’ll get to work. We plan for each day to end by around 3 pm CDT to allow for casual connections, exploration of Kansas City, and (importantly) time for rest in the evenings. Lunch and snacks will be provided on both days.   

Note: We will provide a virtual participation opportunity on both days. 

Travel and Accommodations

Attendees of the Leadership Conference are responsible for booking and managing their own travel and accommodations. However, the Davis Phinney Foundation is providing travel grants to all Ambassadors, CAC leaders/members, and community grant recipients invited to attend.

Travel grant applications will open on April 4 and remain open through August 1, 2022. 
Please contact your program manager if you have questions about these grants. 

In addition to providing travel grants, we have also worked with nearby hotels to offer room blocks at a discounted rate to attendees. Rooms within the room blocks are available on a first-come, first-serve basis and may be booked using the information below. All rates listed below are good for 9/29, 9/30, and 10/1. If you choose to extend your stay earlier or later, we cannot guarantee the rates listed below. 

Note: You may choose to stay wherever you are most comfortable using the travel grant support. These room blocks are simply a courtesy for people who would like to take advantage of them. If you qualify for discounts such a AAA, veteran’s discounts, or senior discounts, you may have access to a lower rate than the ones listed here. We encourage you to explore your options!


The Westin Kansas City at Crown Center 
1 E Pershing Rd
Kansas City, MO 64108 

Room Rate: $189.00/night
Distance from WWI Museum: 0.5mi (2min car ride, 8-10 min walk)
Hotel Parking: Valet – $32/day, Standard Self Park – $23/day 

Book The Westin Kansas City at Crown Center or call (888) 627-8359 and mention the Davis Phinney Foundation Room Block to access the discounted rate. All bookings must be made by 5:00 pm CDT, Thursday, September 8. 


Fairfield Inn Kansas City Downtown/Union Hill
3001 Main St
Kansas City, MO 64108 

Room Rate: $139.00/night
Distance from WWI Museum: 0.7mi (4min car ride, 15-20 min walk)
Free Onsite Parking 

Book the Fairfield Inn Kansas City Downtown/Union Hill at a discounted rate. All bookings must be made by 5:00 pm CDT, Thursday, September 8. 


Sheraton Kansas City Hotel at Crown Center
2345 McGee St
Kansas City, MO 64108 

Room Rate: $169.00/night
Distance from WWI Museum: 0.8mi (4min car ride, 15-20 min walk)
Hotel Parking: Valet – $32/day, Standard Self Park – $23/day 

Book the Sheraton Kansas City Hotel at Crown Center, or call (866) 837-4214 and mention the Davis Phinney Foundation Room Block to access the discounted rate. All bookings must be made by 5:00 pm CDT, Thursday, September 8. 

The closest airport to the event is Kansas City International (also referred to as KCI and MCI). Attendees are encouraged to select ground transportation that suits them best for travel to and from the airport and utilize travel grant funds to cover their selection. For detailed information about ground transportation options, visit the KCI website. 

We are grateful to the Rosina K. Sapir Ambassador Fund and Louisiana Walks for Parkinson’s for supporting the Leadership Conference travel grants. 

Things To Do

In the spirit of Healthy Parkinson’s Communities, we want to embrace the uniqueness of the location of this event. In addition to selecting local venues for event programming, we are also intentionally ending our days in the afternoon to allow you time in the evenings to gather in smaller groups or explore on your own. 

We’ll put together a list of recommendations and share them here later this spring/summer. In the meantime, we are looking for volunteers interested in coordinating “after-hours” activities including dinners, happy hours, walks, field trips, and more. If you are interested in dreaming up, planning, and leading one of these activities, complete this form. 

Stay in Touch

Why wait until September to get this party started? Join our “Leadership Conference Chatter” group on the Healthy Parkinson’s Communities HUB to talk all things #LC2022.  

 Have questions about the event schedule, travel grants, planning your participation, or something else?
Contact your program manager or email us at communities@dpf.org.


Gabby Dimotsantos
Community Engagement Manager

Sara Linn Headshot

Sara Linn
Ambassador Leadership Program Manager


Kayla Ferguson
Grants Program Manager

Thank You to Our Sponsors

Sponsor the Leadership Conference

We invite sponsors of this event to join us as participants, learners, and contributors. If you are interested in supporting this important gathering of Parkinson’s community leaders (and joining in the event yourself!) please contact Jorie Parwani at jparwani@dpf.org.