Podcasts

In this episode, we talk with Dr. Aaron Haug about what the terms ON and OFF mean in the context of Parkinson’s, what ON-OFF fluctuations are, and how to work with your doctor to help manage them. Dr. Haug is a movement disorder specialist based in Englewood, Colorado.

September 11, 2025

In this episode of the Parkinson’s Podcast Unfiltered, our hosts tackle how to manage apathy and depression in advanced Parkinson’s while also navigating a healthcare desert. This episode also includes discussion of strategies for sleep, including how to turn over and get comfortable when you feel “velcroed to the bed,” as well as some ideas about exercise options for people with limited mobility, from chair yoga to simple seated movements that anyone can do. Finally, your Unfiltered hosts explore creative outlets like the Haiku for Parkinson’s program that can provide new opportunities for emotional expression and therapeutic benefits for people living with Parkinson’s.

June 5, 2025

Early in their new book, The Parkinson’s Plan: A New Path to Prevention and Treatment, Dr. Ray Dorsey and Dr. Michael Okun write, “We have failed enough, and we have seen enough. Most Parkinson’s is preventable, and it must end.”

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July 9, 2025

In this episode of the Parkinson’s Podcast, we share an excerpt from the Q&A portion of one of our Living with Parkinson’s Meetups, where guest speakers answer community questions about intense exercise, freezing episodes, and sleepiness in Parkinson’s.

June 26, 2025

Join Heather, Kat, and Chris for another episode of The Parkinson’s Podcast Unfiltered. Questions addressed in this episode include navigating apathy–which is one of the most difficult non-motor symptoms of Parkinson’s for many people–and how to evaluate your own disability, changes in ability, and quality of life.

June 5, 2025

In their first episode back after a break for Parkinson’s Awareness Month and some time to tend to personal needs, Heather and Kat dive into a candid conversation about loneliness. Prompted by a listener’s question, they explore how Parkinson’s can impact friendships and what it means to navigate shifting social dynamics.

February 10, 2025

In this episode, Heather and Kay discuss a question they received from a listener whose care partner was going out of town for two weeks, and Heather responds to a question about what helps her when she experiences OFF periods.

December 23, 2024

In this episode, Dr. Arash Fazl discusses the role of the protein alpha-synuclein in Parkinson’s and how this protein is involved in new diagnostic tests for Parkinson’s. Dr. Fazl also shares how these new tests may contribute to additional exciting developments in the future. This is part two of a two-part series about Parkinson’s diagnosis. In the first episode, Dr. Fazl describes the challenges involved in diagnosing Parkinson’s. This episode picks up in the middle of our conversation with Dr. Fazl, right where we ended the first episode.

December 16, 2024

This episode is part one of a two-part series about developments in Parkinson’s diagnosis.

November 27, 2024

In this episode, hosts Heather and Kat share what has been working well for them in their Parkinson’s journeys, including meditation, avoiding over-scheduling, and finding purpose. They discuss the importance of nurturing meaningful connections while also maintaining boundaries to be true to themselves.

November 19, 2024

In this episode, Dr. Bastiaan Bloem shares his perspective about the relationship of exercise to improved mood and cognition for people living with Parkinson’s. This talk was recorded during one of our online educational events.

November 9, 2024

In this episode, join Heather and Kat as they tackle one of the most challenging aspects of life with Parkinson’s – the uncertainty that comes with living with a progressive condition. With humor and honesty, they share personal strategies for finding peace amidst unpredictable symptoms and the uncertainties of life with Parkinson’s. Whether you’re living with Parkinson’s or supporting someone who is, this episode reminds us that while uncertainty is universal, we don’t have to face it alone.

October 9, 2024

In this episode of the Parkinson’s Podcast Unfiltered, Heather and Kat discuss how the moving through the rough spots with grace—both for others and for oneself—can help you live well with Parkinson’s.

September 18, 2024

This episode is an interview with Roger Barker, Professor of Clinical Neuroscience and Honorary Consultant in Neurology, at the University of Cambridge and Addenbrooke’s Hospital. Dr. Barker is known for his groundbreaking work combining basic research on novel therapies for chronic neurodegenerative disorders, like Parkinson’s, with clinical studies aimed at better defining these conditions.

September 4, 2024

In this episode of the Parkinson’s Podcast Unfiltered, Heather and Kat answer five of the most common questions they get asked about Parkinson’s.

August 21, 2024

In this episode, we feature Amy Carlson, who won the prestigious Moth Grand Slam storytelling contest in Los Angeles and shares how the power of storytelling transformed her journey with Parkinson’s.

August 14, 2024

In this episode of the Parkinson’s Podcast Unfiltered, Heather and Kat discuss what it’s like to communicate in a fast-paced digital world while living with Parkinson’s and all the ways it slows you down.

August 7, 2024

In this episode, Dr. Jay L. Alberts explores the impact of forced exercise on Parkinson’s symptoms. Recorded at one of our educational events, Dr. Alberts’ research continues to shape exercise studies in Parkinson’s.