“The Every Victory Counts® manual is the most honest, insightful, inspirational and genuinely helpful compilation of information I’ve seen about Parkinson’s. Every doctor who tells a patient they have Parkinson’s should make sure that person leaves their office with it. It’s a support group in a book.”
– Terry H.
This week we launched our latest edition of the Every Victory Counts manual. We’ve made a few content updates, reorganized some material and updated the format by moving from a spiral to a hard-bound manual. We showed it off for the first time at a local event, and the feedback was great.
As we reviewed the manual over the past year and prepared to update it, one of the actions we took was to ask our most staunch advocates what their favorite page of the manual is and why. Here’s what a few of them had to say:
“The Every Victory Counts manual is a tangible, easy to read resource for anyone associated with the Parkinson’s community in any manner. It has been such a worthwhile resource for me to have to give out, especially to those who are newly diagnosed.”
– Carl Ames, Davis Phinney Foundation Ambassador
“I’ve narrowed my favorite page to 133-134, where Davis Phinney and John Alexander talk about mindfulness, staying positive and seeing Parkinson’s as a blessing and a calling. I describe my journey with Parkinson’s as a gift. I’m able to utilize my knowledge, expertise and personal experience in a way that I help others with Parkinson’s move past fear and despondency to a journey that allows them to live their own best life. So gratifying and rewarding – for me!”
– Marty Acevedo, Davis Phinney Foundation Ambassador
“My favorite section of the Every Victory Counts manual is about self-efficacy (pp 69-71) because I firmly believe that I choose my attitude and my attitude strongly influences my actions. When my emotions about having Parkinson’s leave me sad, I know that choosing a good attitude is imperative to living well that particular day. My choice to take the proverbial Parkinson’s bull by the horns results in a more positive emotional state, which helps me be a good self-advocate and friend to those who love and support me.”
– Lorraine Wilson, Davis Phinney Foundation Ambassador
“My favorite pages of the Every Victory Counts manual are the worksheets (pages 303-382). As a physical therapist, I can refer people to the worksheets and it helps them to organize their thoughts on paper before they see their neurologist.”
– Angee Ludwa, Davis Phinney Foundation Ambassador
“My favorite page of the Every Victory Counts Manual is page 71. This is where you’ll find Diane Cook’s self-efficacy quiz. I feel like this jumps right to the heart of what is essential for anyone living with Parkinson’s disease. This quiz is a wake-up call, an alarm clock and the warning buzzer all wrapped into one regarding how important it is to practice patient-driven medicine. If you aren’t driving your own Parkinson’s bus, your care is going to be sub-optimal and possibly downright regretful. You are the only one who can manage your disease! Your doctor—whether you see an internist a neurologist or movement disorder specialist—is not going to be able to help you without a lot of help from you and your care team. So this is my go-to page when I sit down with a support group who has just received the book. Typically when you hold the book for the first time, you are a little taken aback because it is so thick. Page 71 captures the essence of this book: living well with Parkinson’s is being involved and fully embracing a new way of life; so, there is a lot to learn. The book is thick for a reason and page 71 helps you understand why.”
– Amy Carlson, Davis Phinney Foundation Ambassador
“Being from a mostly rural state, and in an area where we do not have a movement disorder specialist (MDS) at all, there is a tremendous need for the entire Every Victory Counts Manual. Our people have been diagnosed and put on prescriptions, but they have not been educated on the disease at all. Every page of the book matters for our people; however, the one page that I see many have an “Ah-ha moment” on is page 55. Most of them are not aware of the non-motor aspects of Parkinson’s. When I guide them to this page, suddenly a lot of questions pop up from the person with Parkinson’s and their care partner. From here they see the value in learning more and the book becomes so much more relevant.”
– Brian Reedy, Davis Phinney Foundation Ambassador
“It’s been almost 13 years since my diagnosis with Parkinson’s. Back then, and even up until the last couple of years, I completely took for granted how important community and social capital (pages 193 – 197) is to the overall wellness of those dealing with Parkinson’s, and that includes the care partner. Some of Nancy and my most meaningful relationships are with other friends living with Parkinson’s. Complaining is not allowed. Together we support one another, laugh a lot and try to make the community around us a better place. Giving back has become very important to me and has been the source of great joy!”
– Steve Hovey, Davis Phinney Foundation Ambassador
We love hearing about how different sections and pages of the manual have benefited the people who refer to it on a regular basis to live well and to help others live well with Parkinson’s. This feedback helps to ensure that we create the best resource for you.
We’d love to know… What’s Your Favorite Page of the Every Victory Counts manual?
If you have a favorite page, we’d love to read about it in the comments. If you don’t yet have the Every Victory Counts manual, be sure to request your copy today. It’s available as a hard-bound book and as a digital download.