Frank Mundo

Phoenix, AZ, Isleboro, ME

After being diagnosed with Parkinson’s in 2014 and struggling with depression for several years, Frank decided to become as knowledgeable as he could about his diagnosis and joined a local Parkinson’s support group in Maine. Frank put his efforts into creating an online database for people to access information about Parkinson’s in one place. Monitoring 18 primary sources several times throughout the week, there are now nearly 4,000 items on his database for anyone looking for Parkinson’s information.

In his journey to become as knowledgeable as possible about Parkinson’s, Frank has helped establish four Rock Steady Boxing affiliates and has participated in two clinical trials since moving to Arizona. Currently, Frank is working to start a local support group in Sun Lakes and is excited for the initial interest he received during the first meeting. Living well to Frank means not retreating from the challenges and opportunities that present themselves to everyone — those who have Parkinson’s and those who do not.

Today, Frank is excited to help those who are newly diagnosed navigate the despair and fear he encountered when he was first diagnosed. He remembers the people who talked and helped him come to terms with his diagnosis and wants to pay that forward to others.

Ask Frank about:

- Men coping with Parkinson’s
- Newly diagnosed
- Support groups

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