Improving the Health of Spanish Speaking Patients with Parkinson’s:
Woman speaking to doctor

Undertaken by the Chase Family Movement Disorders Center (CFMDC), part of the Ayer Neuroscience Institute of Hartford HealthCare (HHC), this initiative centers around quality care for Hispanic communities in Connecticut. Goals include acquiring an accurate understanding of health disparities in the Hispanic patient population (with the goal of reducing them); improving access to subspecialized clinical care and resources, including opportunities for wellness programs and exercise; improving people with Parkinson’s health literacy about the condition; and establishing connections with local community programs and groups that serve this population.

The scope of this project extends across much of Connecticut in terms of direct patient services but should also create resources that could be used nationally,” the proposal says. “In terms of direct patient care, we hope to provide services to those patients who have not had access to a subspecialty clinic and to better understand their specific challenges. We will also provide our Spanish-speaking patients with targeted, culturally appropriate educational material to help them learn how to manage the myriad aspects of Parkinson’s, including exercise, stress management, medication adherence, managing freezing episodes, as well as more difficult topics such as palliative care.”

  • Duarte Machado, MD, Director of Program Excellence and Recognition, CFMDC
  • Maria Moro-de Casillas, MD, Director of Program Innovation and Clinician Experience, CFMDC
  • Joy Antonelle de Marcaida, MD, Medical Director, CFMDC
  • Greg Panza, PhD, Senior Scientist, Hartford Hospital
  • Wilson Camello, Principal, Camello Communications
  • Ivona Golas, Program Development Manager, CFMDC

We have put an indefinite hold on our Community Grants program as of January 2024.

When we started our HPC Community Grants Program in 2021, we did so because we saw a very real need to invest in grassroots solutions to challenges of access, awareness, and engagement, particularly in underserved communities. Since then, we have been able to invest $470,000 into programs that have moved the needle on creating a more complete path to care, health literacy, and living well in communities across the country.

This pause in community funding is not a pause in our commitment to advancing the agenda of equitable access and care for all people living with Parkinson’s. Nor is it a divestment in the power of grassroots organizing. While we aim to bring this granting program back in the future, we continue to invest in communities through our Healthy Parkinson’s Communities™ initiative and programs including our Ambassador Leadership program, HPC Network, Hispanic Community Engagement, and (most recently) Pedaling for Parkinson’s. Through this effort, we still intend to be a partner with leaders like you who have the vision and creativity necessary to change how people live with Parkinson’s in communities everywhere.

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