Webinar Series: Health Disparities and Parkinson’s

Presented in Partnership with Dance for PD®, a program of the Mark Morris Dance Group

We created our Health Disparities and Parkinson’s Webinar Series as part of our commitment to understanding and working to change deeply rooted inequities in healthcare that black, brown, and indigenous communities; LGBTQ+; immigrant, and refugee communities; and people of color experience.

Transgender and Non-binary People and Parkinson’s Webinar
Transgender and Non-binary People and Parkinson’s Webinar

May 25, 2022

Webinar Recordings
Health Disparities and Parkinson’s: Living Well From A Cultural Context

This webinar was recorded live on September 29, 2021.

There is ample evidence that shows that including exercise, good nutrition, socialization, and more can help people with Parkinson’s manage their symptoms, improve mood, and live well for many years. Yet exercise, eating, and social habits look vastly different for different people, and without addressing this cultural context, accessibility barriers can keep people from integrating these practices to improve their quality of life. In this discussion with Dr. Indu Subramanian and Dr. Greg Pontone, we dug into what it means to apply a cultural context and how the Parkinson’s sector can implement changes to support more people in their pursuit of living well.

Questions covered in this webinar included:
  • What is cultural context?
  • What are some examples of current common advice or practices within the Parkinson’s sector that ignore cultural context?
  • What are some ways cultural context can be used to help people from varying backgrounds implement habits to help them live well?
Health Disparities and Parkinson’s: The LGBTQ+ Community

This webinar was recorded live on June 29, 2021.

Living well with Parkinson’s takes support – from our families, communities, healthcare professionals, workplaces, government, and more. When those systems are compromised due to systemic oppression, bias, or lack of inclusion, health outcomes are compromised. In this webinar, Wissam Deeb, MD, and Nicole Rosendale, MD, helped us understand how issues faced by the LGBTQ+ community show up in Parkinson’s care and how we can increase awareness and create more inclusive spaces to address inequities.

Questions covered in this webinar included:

-How has systemic oppression and bias affected healthcare and wellbeing for members of the LGBTQ+ community historically?

-How do identity and community influence health outcomes, and why is that important for the LGBTQ+ community?

-What are some specific ways that LGBTQ+ people experience inequities in Parkinson’s care and community support?

-What can members of the Parkinson’s community – from individuals to organizations – do to create more inclusive spaces?

Health Disparities and Parkinson’s: Structural Racism and Oppression

This webinar was recorded live on May 27, 2021.

Since 2020, the COVID-19 pandemic has exposed the myriad ways that structural racism and oppression affect healthcare and health outcomes, including wellbeing and quality of life. These same systemic issues plague the Parkinson’s community and result in care inequities and disparities that disproportionately affect people of color, women, people with limited English proficiency, and more.

In this conversation, Nicte I. Mejia, MD, MPH, FAAN, and Aswita Tan-McGrory, MSPH, will discussed how these systems of racism and oppression affect our community, and how we can take these learnings and create the change needed to ensure all people can live well with Parkinson’s.

Health Disparities and Parkinson’s: Understanding the Role of Trust

This webinar was recorded live on April 6, 2021.

Racial differences in Parkinson’s treatment and mortality exist. When it comes to addressing these disparities, the concept of trust comes up in nearly every conversation. But what do we really mean when we talk about trust? In this conversation, Dr. Altaf Saadi and Dr. Consuelo H. Wilkins examined the concept of trust, what we mean when we talk about trust, and how trust is necessary to address health disparities. A few of the questions our panelists answered included:

• What do we mean when we talk about trust?

• How can trust be built?

• What causes trust to break down?

• How can we measure trust?

• How can communities use existing, trusted relationships to address health disparities?

• How can health care providers and health care institutions be more trustworthy?

Health Disparities and Parkinson’s: Bridging the Gap Between Urban and Rural

This webinar was recorded live on February 11, 2021.

When it comes to addressing the needs of a Parkinson’s community, we often talk about an urban/rural divide. It is assumed that the barriers and health disparities that exist for those living in large cities and rural communities are vastly different, but some experts now are suggesting this may not really be the case.

In this webinar, a panel of Parkinson’s organization leaders serving people across the US discussed:

  • Common issues that exist within urban communities and rural communities alike
  • Common assumptions and misunderstandings about rural and urban communities
  • What policy makers and other decision makers miss most often when it comes to addressing the unique needs of our communities
  • What leaders and Parkinson’s advocates can do TODAY to help address health disparities like these that may exist in their own communities

Panelists: Wendy R. Lewis, Amber Winter, Holly Chaimov, and Kathleen Crist, LMSW

Moderator: Soania Mathur, MD

Health Disparities and Parkinson’s: Inequities in Parkinson’s Research

This webinar was recorded live on December 2, 2020.

When it comes to advancements in the care and treatment of Parkinson’s, research is a key component to inform and influence the way therapies are trusted, adopted, prescribed, and followed. But what happens when access to participation in research and even the design of investigations neglects to consider a diverse audience?

In this conversation between Jonathan Jackson, PhD, and Nabila Dahodwala, MD, we explored:

  • Why diverse participation in research matters
  • What researchers get wrong about designing and recruiting for diverse participation
  • What leaders in health disparities and Parkinson’s research are focusing on right now
  • What role research can play when it comes to changing equity and access to Parkinson’s care
Health Disparities and Parkinson’s: Understanding the Issue

This webinar was recorded live on August 6, 2020.

We will begin this series by identifying what health disparities look like in the Parkinson’s community. Our expert panelists, who have extensive experience in research, medical care, hospital management, community outreach, and community programming, will help define the problem and share their experiences to help us root our understanding and identify future actions.

In this webinar, our panel will discussed:

  • The definition of health disparities
  • The personal and professional experiences that led them to do this work
  • Their experience observing and then implementing efforts that have shown promise to change this issue
  • Their call to action for all of us – where they see the most urgent needs and when, where, and how we can help bring about change

Panelists: Nabila Dahodwala, MD, Jonathan Jackson, PhD, Nicte Mejia, MD, MPH, Claudia Martinez, MD, Altaf Saadi, MD MSc

Moderator: David Leventhal

Black, brown, and indigenous communities; LGBTQ+; immigrant and refugee communities; and people of color experience disproportionate inequities in healthcare. In the Parkinson’s world, we know that the people we see at events, classes, support groups, and programs do not fully represent our nation’s diversity, no matter the demographics of the surrounding areas. For too long, many of us have noticed this, wondered why, and moved on.

But we recognize that this absence is not by accident. It is not by chance. It is the result of deeply rooted systemic health and cultural inequities. And we are not satisfied with merely noticing this absence. We want to understand it and change it.

Please join us for our Health Disparities and Parkinson’s Webinar Series, starting August 6, so we can begin to understand this issue better. We will learn from thought leaders and pioneers in this area so that we may see this problem more clearly and begin to understand how we can change our communities.

We express gratitude and acknowledge the work of the Black Lives Matter movement and the social justice work of countless others whose years of dedicated advocacy have led us all to this tipping point. We honor their work by doing our own.

We are a community of learners. We are not here to come up with all the answers, but instead to be deeply curious. We are here to listen.

As ideas come to me, I will capture them. I will notice when I have only questions and no answers and capture these as well. I will take time to process what I learn today and consider how I can approach the world in ways that challenge the status quo, broaden the horizon, and create new pathways for my community.

Check out this blog post for some working definitions of common terms as well as an extended list of resources that dig into topics including race and racism, implicit bias, equity, and much more.

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