Sabela Avión Martínez
Long Island City, New York
I was diagnosed in 2016 at 38. I’m one of the co-founders of Con P de Párkinson, a non-profit created for and by Spanish-speaking women living with young onset Parkinson’s disease (YOPD). From the virtual world, without borders or time zones, Con P de Párkinson works towards three objectives: to give visibility to Parkinson’s disease in general and early onset Parkinson’s disease in particular, to promote research that includes a gender perspective, and to improve the quality of life of those affected by Parkinson’s.
To quote one of my friends from Con P de Párkinson, it’s not about hoping or wishing to go back to a healthy life or being independent again, but hoping to live a good life, a full life, despite adversity.